Wurzweiler School of Social Work, Yeshiva University, New York, New York 10033, USA.
Soc Work Health Care. 2012;51(7):597-612. doi: 10.1080/00981389.2012.683679.
Given the chronicity and uncertainty of lupus, patients and their family members will face physical, financial, social, and emotional challenges that can be overwhelming. This article records the experiences of three different families affected by lupus. Although these patients and families are very different, their perspectives identify common emotional challenges. Understanding these experiences from their perspectives can help facilitate an assessment that is highly attuned to the potential psychosocial impact of lupus on the patient and the family.
鉴于狼疮的慢性和不确定性，患者及其家庭成员将面临身体、经济、社会和情感方面的挑战，这些挑战可能会让人难以承受。本文记录了三个不同家庭受狼疮影响的经历。尽管这些患者和家庭非常不同，但他们的观点确定了共同的情感挑战。从他们的角度理解这些经历可以帮助促进对狼疮对患者及其家庭的潜在心理社会影响进行高度敏感的评估。
