• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

了解与管理系统性红斑狼疮(SLE)。

Understanding and managing systemic lupus erythematosus (SLE).

作者信息

Giffords Elissa D

机构信息

Social Work Program, Department of Health Care & Public Administration, Long Island University, C.W. Post Campus, 720 Northern Boulevard, Brookville, NY 11548, USA.

出版信息

Soc Work Health Care. 2003;37(4):57-72. doi: 10.1300/J010v37n04_04.

DOI:10.1300/J010v37n04_04
PMID:14620904
Abstract

Systemic lupus erythematosus (SLE) is a chronic autoimmune disease that many people know little about. Lupus can affect the skin, joints, kidney, heart, lungs, nervous system, blood and other organs or systems. For most people it is a relatively mild disease; for others it causes life-threatening problems. Social workers and related health professionals must learn to recognize how lupus affects individuals and their families' physical, psychological and social functioning in order to develop effective interventions for their patients. This article provides basic medical information about lupus and discusses strategies to help facilitate understanding, coping and management of this disease.

摘要

系统性红斑狼疮(SLE)是一种许多人了解甚少的慢性自身免疫性疾病。狼疮可影响皮肤、关节、肾脏、心脏、肺、神经系统、血液及其他器官或系统。对大多数人而言,它是一种相对较轻的疾病;对另一些人来说,它会引发危及生命的问题。社会工作者及相关健康专业人员必须学会认识狼疮如何影响个体及其家庭的身体、心理和社会功能,以便为其患者制定有效的干预措施。本文提供了有关狼疮的基本医学信息,并讨论了有助于促进对该疾病的理解、应对和管理的策略。

相似文献

1
Understanding and managing systemic lupus erythematosus (SLE).了解与管理系统性红斑狼疮(SLE)。
Soc Work Health Care. 2003;37(4):57-72. doi: 10.1300/J010v37n04_04.
2
How does quality of life of patients with systemic lupus erythematosus compare with that of other common chronic illnesses?系统性红斑狼疮患者的生活质量与其他常见慢性病患者的生活质量相比如何?
J Rheumatol. 2005 Sep;32(9):1706-8.
3
Systemic lupus erythematosus: the great masquerader.系统性红斑狼疮:伪装大师。
Nurse Pract. 1984 Aug;9(8):13-22.
4
Stress and coping strategies in systemic lupus erythematosus: a review.系统性红斑狼疮中的压力与应对策略:综述
Neuroimmunomodulation. 2006;13(5-6):283-93. doi: 10.1159/000104856. Epub 2007 Aug 6.
5
[Systemic lupus erythematosus and pregnancy].[系统性红斑狼疮与妊娠]
Wiad Lek. 2008;61(4-6):161-5.
6
Fatigue in systemic lupus erythematosus: contributions of disease activity, pain, depression, and perceived social support.系统性红斑狼疮中的疲劳:疾病活动、疼痛、抑郁及感知到的社会支持的影响
J Rheumatol. 2005 Sep;32(9):1699-705.
7
Prevalence and correlates of perceived unmet needs of people with systemic lupus erythematosus.系统性红斑狼疮患者未满足需求的感知患病率及其相关因素
Patient Educ Couns. 2005 Apr;57(1):30-8. doi: 10.1016/j.pec.2004.03.015.
8
Caring for the adolescent with systemic lupus erythematosus.
Adolesc Med. 1998 Feb;9(1):59-67, vi.
9
Practical considerations for maintaining independence among individuals with functional impairment.维持功能障碍个体独立性的实际考量。
J Gerontol Soc Work. 2005;46(1):3-16. doi: 10.1300/J083v46n01_02.
10
Living with lupus: a qualitative report.狼疮患者的生活:一项定性报告。
Soc Work Health Care. 2011;50(4):330-43. doi: 10.1080/00981389.2011.554302.

引用本文的文献

1
Coping with systemic lupus erythematosus in patients' words.患者自述:应对红斑狼疮
Lupus Sci Med. 2022 May;9(1). doi: 10.1136/lupus-2022-000656.
2
The Effect of Travel Burden on Depression and Anxiety in African American Women Living with Systemic Lupus.旅行负担对患有系统性红斑狼疮的非裔美国女性抑郁和焦虑的影响。
Healthcare (Basel). 2021 Nov 5;9(11):1507. doi: 10.3390/healthcare9111507.
3
Support Methodologies for African American Women With Lupus - Comparing Three Methods' Effects on Patient Activation and Coping.针对患有狼疮的非裔美国女性的支持方法——比较三种方法对患者激活和应对的影响。
Front Psychol. 2021 Oct 5;12:734390. doi: 10.3389/fpsyg.2021.734390. eCollection 2021.
4
Patient Perspective on Using Digital Resources to Address Unmet Needs in Systemic Lupus Erythematosus.患者视角下利用数字资源满足系统性红斑狼疮未满足的需求。
Arthritis Care Res (Hoboken). 2021 Nov;73(11):1568-1576. doi: 10.1002/acr.24399. Epub 2021 Sep 8.
5
Peer approaches to self-management (PALS): comparing a peer mentoring approach for disease self-management in African American women with lupus with a social support control: study protocol for a randomized controlled trial.同伴自我管理(PALS):比较针对非裔美国狼疮女性疾病自我管理的同伴指导方法与社会支持对照:一项随机对照试验的研究方案。
Trials. 2019 Aug 23;20(1):529. doi: 10.1186/s13063-019-3580-4.
6
"We Would Still Find Things to Talk About": Assessment of Mentor Perspectives in a Systemic Lupus Erythematosus Intervention to Improve Disease Self-Management, Empowering SLE Patients.“我们仍然会有话题可聊”:评估系统性红斑狼疮干预措施以改善疾病自我管理、赋能 SLE 患者中的导师观点。
J Natl Med Assoc. 2018 Apr;110(2):182-189. doi: 10.1016/j.jnma.2017.05.003. Epub 2017 May 27.
7
Research Ethics in Behavioral Interventions Among Special Populations: Lessons From the Peer Approaches to Lupus Self-Management Study.特殊人群行为干预中的研究伦理:狼疮自我管理同伴方法研究的经验教训
Am J Med Sci. 2018 Feb;355(2):104-112. doi: 10.1016/j.amjms.2017.08.021. Epub 2017 Sep 21.
8
Effective Self-Management Interventions for Patients With Lupus: Potential Impact of Peer Mentoring.针对狼疮患者的有效自我管理干预措施:同伴指导的潜在影响。
Am J Med Sci. 2017 Jun;353(6):580-592. doi: 10.1016/j.amjms.2017.01.011. Epub 2017 Feb 3.
9
Stress and Depression in Relation to Functional Health Behaviors in African American Patients with Systemic Lupus Erythematosus.非裔美国系统性红斑狼疮患者的压力、抑郁与功能健康行为的关系
Rheumatology (Sunnyvale). 2014;2014(Suppl 4). doi: 10.4172/2161-1149.S4-005. Epub 2014 Nov 7.
10
Structural insights into a human anti-IFN antibody exerting therapeutic potential for systemic lupus erythematosus.结构洞察一种人类抗 IFN 抗体在系统性红斑狼疮中的治疗潜力。
J Mol Med (Berl). 2012 Jul;90(7):837-46. doi: 10.1007/s00109-012-0866-3. Epub 2012 Feb 4.