Vanderbilt University and Vanderbilt Kennedy Center, Nashville, Tennessee 37203, USA.
Autism. 2013 Jan;17(1):103-16. doi: 10.1177/1362361312441266. Epub 2012 Aug 21.
In this review, we examine the ways in which researchers have defined successful adult outcomes for individuals with autism spectrum disorders (ASDs) from the first systematic follow-up reports to the present day. The earliest outcome studies used vague and unreliable outcome criteria, and institutionalization was a common marker of poor outcomes. In the past decade, researchers have begun to standardize the measurement of adult outcomes with specific criteria based on friendships, employment, and living arrangements. Although nearly all of these studies have agreed that the majority of adults with ASD have poor outcomes, evolving concepts of what it means to be an adult could have an impact on outcomes measured. For example, some researchers have suggested that taking into account the person-environment fit could reveal a more optimistic picture of outcomes for these adults. Suggestions for future research are discussed.
在这篇综述中,我们考察了研究人员从最早的系统随访报告至今,定义自闭症谱系障碍(ASD)个体成功成人结局的方法。最早的结局研究使用模糊且不可靠的结局标准,而住院治疗是不良结局的常见标志。在过去的十年中,研究人员已经开始使用基于友谊、就业和生活安排的具体标准来标准化成人结局的测量。尽管几乎所有这些研究都认为大多数 ASD 成年人的结局较差,但对成人含义的不断发展的概念可能会对测量的结局产生影响。例如,一些研究人员认为,考虑人与环境的适配性可以更乐观地描绘这些成年人的结局。讨论了对未来研究的建议。