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成年自闭症患者参与娱乐活动的情况。

Involvement of Autistic Adults in Recreational Activities.

作者信息

Préfontaine Isabelle, Normand Claude, Berbari Jade, Fecteau Stéphanie, Ruel Julie, Couture Mélanie

机构信息

Department of Foundations and Practices in Education, Université Laval, 2320 Rue Des Bibliothèques, TS-750, Québec, QC, G1V 0A6, Canada.

University Research Institute on Intellectual Disability and Autism Spectrum Disorder, Trois-Rivières, Québec, Canada.

出版信息

J Autism Dev Disord. 2024 Sep 6. doi: 10.1007/s10803-024-06521-0.

DOI:10.1007/s10803-024-06521-0
PMID:39240464
Abstract

PURPOSE

Participation in recreational activities (RA) has a positive impact on quality of life. The involvement of autistic adults in RA has rarely been documented. This study aimed to describe the RA involvement of autistic adults with and without intellectual disability (ID), and identify potential facilitators and barriers to their participation.

METHODS

We conducted a wide-ranging online survey of autistic people aged 16 years and over living in Québec, Canada. This study focused on the questions concerning RA. We recruited participants through social media and community partners.

RESULTS

The sample consisted of 316 participants. The most frequent activities engaged in were cultural outings, city walks, and nature walks. About 40% of participants frequently engaged in at least three different activities. About 12% did not engage in any frequent activity. Nearly 95% of participants reported participating in at least one activity with others, with family members identified most often as partners. For all participants, involvement in RA was facilitated by interest in the activity, a comfortable environment, and being accompanied by a friend or family member. Conversely, presence of a crowd, high cost of activities, and limited availability of RA restricted respondents' participation.

CONCLUSIONS

RA of autistic adults are diverse in terms of number and type of activities engaged in. Family members play a crucial role in the respondents' RA involvement. Parent proxy identified barriers stemming mainly from the environment. Barriers identified by self-respondents came from the interaction of autistic traits with the environment.

摘要

目的

参与娱乐活动对生活质量有积极影响。关于成年自闭症患者参与娱乐活动的情况鲜有记录。本研究旨在描述有和没有智力障碍的成年自闭症患者参与娱乐活动的情况,并确定其参与的潜在促进因素和障碍。

方法

我们对居住在加拿大魁北克省16岁及以上的自闭症患者进行了一项广泛的在线调查。本研究聚焦于与娱乐活动相关的问题。我们通过社交媒体和社区合作伙伴招募参与者。

结果

样本包括316名参与者。最常参与的活动是文化郊游、城市漫步和自然漫步。约40%的参与者经常参与至少三项不同活动。约12%的参与者没有经常参与任何活动。近95%的参与者报告至少与他人一起参与过一项活动,其中家庭成员最常被视为活动伙伴。对所有参与者而言,对活动的兴趣、舒适的环境以及有朋友或家人陪伴促进了他们参与娱乐活动。相反,人群的存在、活动的高成本以及娱乐活动的有限可及性限制了受访者的参与。

结论

成年自闭症患者参与娱乐活动的数量和类型各不相同。家庭成员在受访者参与娱乐活动中起着关键作用。家长代答者指出的障碍主要源于环境。自我受访者指出的障碍来自自闭症特质与环境的相互作用。

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Avoiding Ableist Language: Suggestions for Autism Researchers.避免使用歧视性语言:给自闭症研究者的建议。
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