为产前诊断复杂先天性心脏缺陷做好身心准备。
Preparing heart and mind following prenatal diagnosis of complex congenital heart defect.
机构信息
University of Wisconsin-Madison, School of Nursing, Madison, Wisconsin 53792-2455, USA.
出版信息
Qual Health Res. 2012 Dec;22(12):1694-706. doi: 10.1177/1049732312458371. Epub 2012 Aug 27.
Abstract
Drawing on attachment and caregiving theory and the concept of motivation, the purpose of this descriptive study was to examine parents' retrospective accounts of their prenatal experiences after receiving the diagnosis of a fetal heart defect. These parents constituted a subgroup of participants in a larger longitudinal study of parenting an infant with a complex congenital heart defect. Data were derived from 14 semistructured interviews with 13 mothers and 3 fathers in the home or hospital setting. A directed content analysis yielded a central category of preparing heart and mind for infant caregiving. Preparing heart and mind is a preliminary caregiving goal within the caregiving system that generates intentions and expectations indicative of specific caregiving motivations to relate to the baby, handle circumstances practically, and manage infant medical care. A theoretical model illustrates the prenatal process these parents engaged in to provide care to their infants with life-threatening medical conditions.
摘要
本描述性研究以依恋和养育理论以及动机概念为基础，旨在探讨父母在收到胎儿心脏缺陷诊断后，对其产前经历的回顾性描述。这些父母是一项关于养育患有复杂先天性心脏缺陷婴儿的纵向研究的参与者亚组。数据来自 13 位母亲和 3 位父亲在家庭或医院环境下的 14 次半结构化访谈。有针对性的内容分析得出一个中心类别：为婴儿养育做心理准备。为心与脑做准备是养育系统中的一个初步养育目标，它产生了与婴儿建立关系、实际处理情况和管理婴儿医疗护理的特定养育动机的意图和期望。一个理论模型说明了这些父母在为患有危及生命的医疗状况的婴儿提供护理时所经历的产前过程。
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