Svavarsdottir E K, McCubbin M
School of Nursing, The University of Wisconsin, Madison 53792-2455, USA.
J Pediatr Nurs. 1996 Aug;11(4):207-16. doi: 10.1016/S0882-5963(96)80093-5.
This purpose of this study was to examine the relationships between caregiving demands, family system demands, and parental coping behavior in 71 families who had an infant 1 year of age or younger diagnosed with a congenital heart defect. Data for this descriptive correlational study were collected in the parents' homes. Mothers spent the most caregiving time attending to their infants' physical needs, and fathers spent the most time attending to infants' emotional and developmental needs. Fathers of younger infants reported higher infant caregiving demands and more helpful coping strategies related to the family, self, and the health care situation. Unexpectedly, no significant relationships were found between family system demands, infant caregiving demands, and mothers' coping strategies. Parents of later-born infants with a congenital heart defect experienced higher levels of family system demands than did first-time parents.
本研究的目的是考察71个家中有1岁及以下被诊断患有先天性心脏病婴儿的家庭中，照顾需求、家庭系统需求与父母应对行为之间的关系。这项描述性相关研究的数据是在父母家中收集的。母亲花费在照顾婴儿身体需求上的时间最多，而父亲花费在照顾婴儿情感和发育需求上的时间最多。年龄较小婴儿的父亲报告称，婴儿照顾需求更高，且在家庭、自身及医疗状况方面有更多有效的应对策略。出乎意料的是，未发现家庭系统需求、婴儿照顾需求与母亲应对策略之间存在显著关系。患有先天性心脏病的后出生婴儿的父母比初为父母者经历的家庭系统需求水平更高。
