一项纵向心理肿瘤学研究中非洲裔美国和拉丁裔美国乳腺癌幸存者的招募与留存策略
Recruitment and retention strategies of African American and Latina American breast cancer survivors in a longitudinal psycho-oncology study.
作者信息
Ashing-Giwa Kimlin, Rosales Monica
机构信息
Department of Population Sciences, Center of Community Alliance for Research and Education, City of Hope National Medical Center, Duarte, CA, USA.
出版信息
Oncol Nurs Forum. 2012 Sep;39(5):E434-42. doi: 10.1188/12.ONF.E434-E442.
PURPOSE/OBJECTIVES: To describe recruitment and retention strategies of a psychosocial intervention with African American and Latina American breast cancer survivors (BCSs).
DESIGN
Prospective design with pre- and post-testing.
SETTING
A mailed survey and assignment to telephone counseling or education booklet only.
SAMPLE
587 African American and Latina American BCSs were recruited.
METHODS
The sample was drawn from the population-based California cancer and hospital registries, as well as community agencies. Mailed self-report health-related quality-of-life assessments were at baseline and 4-6 months follow-up.
MAIN RESEARCH VARIABLES
Accrual outcomes; recruitment and retention strategies.
FINDINGS
A total of 375 (64%) completed the baseline survey and 320 (55%) completed both baseline and follow-up assessments. The recruitment outcomes suggest that very special attention must be paid to the initial recruitment of Latina Americans to engage their interest and participation. For African Americans, particular attention must be devoted to their retention to address potential attrition.
CONCLUSIONS
Findings suggest that the inclusion of lower-income and ethnic minority cancer survivors in a longitudinal intervention study is doable. The results indicate that recruitment outcomes are influenced by participant and study characteristics. Successful enrollment requires investigations that attend to culturally and socioecologically informed recruitment and retention strategies, from staff selection, training, and supervision to overall study approach protocol, to address barriers to participation.
IMPLICATIONS FOR NURSING
Nursing research and practice have championed survivorship care, including psychosocial care. This article outlines practical strategies to recruit and retain population-based samples, ethnic minorities, and underserved survivors.
目的/目标:描述针对非裔美国人和拉丁裔美国乳腺癌幸存者(BCS)的心理社会干预的招募和保留策略。
设计
采用前后测试的前瞻性设计。
设置
仅通过邮寄调查以及分配电话咨询或教育手册。
样本
招募了587名非裔美国人和拉丁裔美国BCS。
方法
样本来自基于人群的加利福尼亚癌症和医院登记处以及社区机构。在基线和4 - 6个月随访时进行邮寄的自我报告健康相关生活质量评估。
主要研究变量
应计结果;招募和保留策略。
结果
共有375人(64%)完成了基线调查,320人(55%)完成了基线和随访评估。招募结果表明,必须特别关注拉丁裔美国人的初始招募,以激发他们的兴趣和参与度。对于非裔美国人,必须特别关注他们的保留情况,以应对潜在的损耗。
结论
研究结果表明,将低收入和少数族裔癌症幸存者纳入纵向干预研究是可行的。结果表明,招募结果受参与者和研究特征的影响。成功招募需要进行调查,从人员选择、培训和监督到总体研究方法方案,都要采用具有文化和社会生态学依据的招募和保留策略,以解决参与障碍。
对护理的启示
护理研究和实践一直倡导幸存者护理,包括心理社会护理。本文概述了招募和保留基于人群的样本、少数族裔以及服务不足的幸存者的实用策略。