Green Saran, Santaolalla Aida, Russell Beth, George Gincy, Wylie Harriet, Monroy-Iglesias Maria, Lawlor Ailbhe, Minott Mark, Carty Annette, Bailey Vernon, Green Tene, Peterson Zhane, Young Charlene, Hemelrijck Mieke Van
Comprehensive Cancer Centre, King's College London, London SE1 9RT, UK.
Patient and Public Involvement Cancer Research Group for Diverse Backgrounds, Comprehensive Cancer Centre, 3rd Floor Bermondsey Wing, Guy's Hospital, London SE1 9RT, UK.
Ecancermedicalscience. 2025 Apr 10;19:1885. doi: 10.3332/ecancer.2025.1885. eCollection 2025.
This paper addresses the persistent underrepresentation of Black, Asian and minority ethnic communities in health research, particularly in the context of prostate cancer. Despite the disproportionately higher burden of cancer in Black, Asian and minority ethnic communities, their representation in research remains inadequate. This paper highlights the efforts of The Patient and Public Involvement Cancer Research Group for Diverse Backgrounds (Diverse PPI), a PPI group established to address this disparity. We describe the rationale behind Diverse PPI's formation, emphasising the need for targeted outreach and culturally competent practices. The group's activities include organising public engagement events, developing resources such as ARUARES (a tool designed to foster inclusive research) and collaborating with researchers on various projects. The paper illustrates how Diverse PPI has made a positive impact through collaborative working, empowering diverse ethnic communities and advocating for inclusive research practices. We conclude by emphasising the importance of similar initiatives in addressing health disparities and achieving equitable representation in cancer research.
本文探讨了黑人、亚裔和少数族裔群体在健康研究中代表性持续不足的问题，特别是在前列腺癌研究背景下。尽管黑人、亚裔和少数族裔群体患癌症的负担 disproportionately 更高，但他们在研究中的代表性仍然不足。本文强调了“不同背景患者与公众参与癌症研究小组”（Diverse PPI）所做的努力，该小组是为解决这一差距而设立的一个患者与公众参与小组。我们描述了 Diverse PPI 成立的背后理由，强调了有针对性的外展和具备文化胜任力做法的必要性。该小组的活动包括组织公众参与活动、开发诸如 ARUARES（一种旨在促进包容性研究的工具）等资源，以及与研究人员就各种项目开展合作。本文阐述了 Diverse PPI 如何通过合作、增强不同族裔群体的权能以及倡导包容性研究做法产生了积极影响。我们在结论中强调了类似举措在解决健康差距和在癌症研究中实现公平代表性方面的重要性。
