Bergelt Corinna, Ernst Johanna Christine, Beierlein Volker, Inhestern Laura, Holes Sarah, Möller Birgit, Romer Georg, Koch Uwe
Universitätsklinikum Hamburg-Eppendorf, Institut und Poliklinik für Medizinische Psychologie, Hamburg.
Prax Kinderpsychol Kinderpsychiatr. 2012;61(6):378-95. doi: 10.13109/prkk.2012.61.6.378.
Children of cancer patients are at risk for developing psychological symptoms. The parental appraisal of the child's psychological condition is a key variable for the utilization of child-centred psychosocial services. This study aimed at the systematic analysis of parental appraisals of changes in the emotional condition or behaviour of their children. We conducted an epidemiologic survey with a sample size of 1,809 patients with different cancer diagnoses, giving information about 2,581 children aged 21 years or younger at time of diagnosis. Quantitative information on children's distress during the disease and on changes in psychological condition or behaviour and qualitative information on the kind of changes were analysed. About half of the children were considered to be psychologically strongly affected during the disease. For about 25 % negative changes in psychological condition or behaviour are reported, positive changes are reported for 20 % of the children. Negative changes are most frequently described in young children (up to five years), positive changes are most frequently described in young adults (18 to 21 years). The results indicate that from the cancer parent's view many children are substantially distressed. Thus, the implementation of additional preventive psychosocial services seems reasonable and necessary.
癌症患者的子女有出现心理症状的风险。父母对孩子心理状况的评估是利用以儿童为中心的社会心理服务的关键变量。本研究旨在系统分析父母对其子女情绪状况或行为变化的评估。我们进行了一项流行病学调查，样本包括1809名患有不同癌症诊断的患者，他们提供了有关诊断时年龄在21岁及以下的2581名儿童的信息。分析了关于儿童在患病期间的痛苦、心理状况或行为变化的定量信息，以及关于变化类型的定性信息。约一半的儿童在患病期间被认为受到了严重的心理影响。约25%的儿童报告有心理状况或行为的负面变化，20%的儿童报告有积极变化。负面变化在幼儿（5岁及以下）中最常被描述，积极变化在青年（18至21岁）中最常被描述。结果表明，从癌症患儿父母的角度来看，许多儿童有相当大的痛苦。因此，实施额外的预防性社会心理服务似乎是合理且必要的。
