Wilson Jefferson R, Hashimoto Robin E, Dettori Joseph R, Fehlings Michael G
University of Toronto, Toronto Western Hospital, Ontario, Canada.
Evid Based Spine Care J. 2011 Feb;2(1):37-44. doi: 10.1055/s-0030-1267085.
Systematic review.
According to current estimates, there are more than 1 million people living with a spinal cord injury (SCI) in the United States alone. Given the potentially devastating impact of SCI on health-related quality of life (QoL), we sought to gain an improved understanding of QoL outcomes in SCI.
To identify and describe common QoL outcomes measures in patients with SCI.
A systematic review of the English-language literature was undertaken for articles published from 1998 through December 2010. Electronic databases and reference lists of key articles were searched to identify measures or indices used to evaluate QoL outcomes in patients with SCI. The titles and abstracts of the SCI peer-reviewed literature were searched to determine which of these outcome measures were most commonly used to evaluate QoL in patients with SCI.
We identified 27 outcome measures used to evaluate QoL in patients with SCI. In SCI literature, the six most commonly used objective outcome measures were the Short-form 36 (SF-36); Craig Handicap Assessment and Reporting Technique (CHART); Short-form 12 (SF-12); Sickness Impact Profile (SIP68); Reintegration to Normal Living Index (RNL); and Community Integration Questionnaire (CIQ). The six subjective measures that were most frequently used were the Satisfaction with Life Scale (SWLS); Quality of Life Index (QLI); Life Satisfaction Questionnaire (LISAT-9/-1); World Health Organization Quality of Life-BREF scale (WHOQOL-BREF); Perceived Quality of Life (PQOL); and global QoL. All six objective measures have been validated in an SCI population, and four of the six subjective measures have been similarly validated. Three of each of the objective and subjective measures have been reliability tested in a population with SCI.
In addition to neurological and functional changes after SCI, QoL outcomes should be routinely assessed. Choice of appropriate QoL measure should be influenced by the study objectives and design, as well as the psychometric properties of the particular measure within the context of SCI.
系统评价。
据目前估计，仅在美国就有超过100万人患有脊髓损伤（SCI）。鉴于SCI对健康相关生活质量（QoL）可能产生的毁灭性影响，我们试图更好地了解SCI患者的生活质量结果。
识别并描述脊髓损伤患者常用的生活质量结果测量方法。
对1998年至2010年12月发表的英文文献进行系统评价。检索电子数据库和关键文章的参考文献列表，以确定用于评估脊髓损伤患者生活质量结果的测量方法或指标。检索脊髓损伤同行评审文献的标题和摘要，以确定这些结果测量方法中哪些最常用于评估脊髓损伤患者的生活质量。
我们识别出27种用于评估脊髓损伤患者生活质量的结果测量方法。在脊髓损伤文献中，六种最常用的客观结果测量方法是简明健康调查问卷36项（SF-36）；克雷格残疾评估与报告技术（CHART）；简明健康调查问卷12项（SF-12）；疾病影响量表（SIP68）；重新融入正常生活指数（RNL）；以及社区融入问卷（CIQ）。六种最常用的主观测量方法是生活满意度量表（SWLS）；生活质量指数（QLI）；生活满意度问卷（LISAT-9/-1）；世界卫生组织生活质量简表（WHOQOL-BREF）；感知生活质量（PQOL）；以及总体生活质量。所有六种客观测量方法均已在脊髓损伤人群中得到验证，六种主观测量方法中的四种也得到了类似验证。客观和主观测量方法各有三种在脊髓损伤人群中进行了信度测试。
除脊髓损伤后的神经和功能变化外，还应常规评估生活质量结果。合适的生活质量测量方法的选择应受研究目的和设计以及特定测量方法在脊髓损伤背景下的心理测量特性的影响。
