Murgia F, Cotognini C, Montemitro E, Cilli M, Renzetti E, Lucidi V, Bella S
Cystic Fibrosis Unit, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
Clin Ter. 2012;163(3):e111-4.
In the present study, we examined data related to adherence to telemonitoring in our CF patients followed at home for a period of 2 years, in the aim to improve the follow-up in terms of efficiency and appropriateness.
We kept electronic records of transmissions, in spreadsheet format. For each transmission, the main parameters and any action taken were collected. We carried out automatically a monthly summary of activities, a monthly average percentage of adherence to prescribed frequency of transmissions, monitored the contacts and phone calls.
We received in the period from February 15, 2010 to February 15, 2012 overall 1364 transmissions in 515 days (1817 spirometry, 414 nocturnal pulse-oximetry and 398 questionnaires on symptoms) The average compliance in the reporting period was 10,16%, with an increasing trend.
The improvement of outcome in FC necessarily passes through an improvement of the adherence to treatment. More psychological and behavioural studies are needed in order to gradually remove the obstacles which still prevent a further improvement in long-term outcome.
在本研究中，我们检查了在家随访2年的囊性纤维化（CF）患者的远程监测依从性相关数据，旨在提高随访的效率和适当性。
我们以电子表格形式保存传输记录。对于每次传输，收集主要参数和采取的任何行动。我们自动进行每月活动总结、每月规定传输频率的依从性平均百分比，并监测联系和电话情况。
在2010年2月15日至2012年2月15日期间，我们在515天内共收到1364次传输（1817次肺活量测定、414次夜间脉搏血氧饱和度测定和398份症状问卷）。报告期内的平均依从率为10.16%，呈上升趋势。
囊性纤维化患者治疗效果的改善必然要通过提高治疗依从性来实现。需要更多的心理和行为研究，以便逐步消除仍然阻碍长期治疗效果进一步改善的障碍。
