Bella S, Murgia F, Tozzi A E, Cotognini C, Lucidi V
Cystic Fibrosis diagnosis and treatment Unit, Children's Hospital Bambino Gesù, Research and Care Institute, Rome, Italy.
Clin Ter. 2009;160(6):457-60.
We studied the effect of Telehomecare (THC) in a group of Cystic Fibrosis (CF) patients, with the aim to early recognize the relapses of pulmonary infections. Data obtained with Vivisol (OXYTEL) instrumentation were collected from 2001 to 2005.
The study has involved 17 patients (11 f, 6 m) affected by CF, treated with THC, in addition to the usual therapeutic protocol, for an average period of 29.6 months +/- 13.5. The mean age for THC enrollment was 15.74 years +/- 5.8. As controls, the study has involved the same patients during the 12 months prior to THC start-up and 28 patients affected by CF treated at our Unit (13 f, 15 m; average age 14.77 +/- 5.22).
The results show a statistically significant decrease of outpatient accesses and increase of therapy cycles, and a trend of higher stability of the respiratory function, in THC treated subjects compared to controls.
Our study suggests that THC programs may not be optimally accepted by CF patients, and that its use seems to increase in general the rate of access to health care without demonstrating any clear effect of pulmonary function.
我们研究了远程家庭护理（THC）对一组囊性纤维化（CF）患者的影响，旨在早期识别肺部感染的复发情况。使用Vivisol（OXYTEL）仪器从2001年至2005年收集数据。
该研究纳入了17例CF患者（11例女性，6例男性），除常规治疗方案外，还接受了THC治疗，平均治疗时间为29.6个月±13.5个月。纳入THC研究时的平均年龄为15.74岁±5.8岁。作为对照，研究纳入了这些患者在开始THC治疗前的12个月期间的情况，以及在我们科室接受治疗的28例CF患者（13例女性，15例男性；平均年龄14.77±5.22岁）。
结果显示，与对照组相比，接受THC治疗的患者门诊就诊次数在统计学上显著减少，治疗周期增加，呼吸功能稳定性有提高趋势。
我们的研究表明，CF患者可能未最佳地接受THC项目，并且其使用总体上似乎增加了获得医疗保健的比率，但未显示出对肺功能有任何明显影响。
