MD Anderson Cancer Cancer, 1515 Holcombe Blvd., Houston, TX 77030, USA.
Curr Oncol Rep. 2012 Dec;14(6):486-93. doi: 10.1007/s11912-012-0271-7.
Electronic data sharing is a critical, but underappreciated, requirement for modern medical informatics systems. This capability is facilitated by acquisition of structured clinical data, but optimized only if this data is stored and transmitted using standardized representations. Most electronic medical record and clinical trials management systems are poorly suited for data sharing. In the near future, sharing clinical outcome data is likely to become very important, so these capabilities must be improved. In this article, basic concepts of electronic data sharing are reviewed and their use illustrated in a data-sharing project developed to support Hematopoietic Cell Transplantation reporting to a national database.
电子数据共享是现代医学信息学系统的一个关键但未被充分认识的要求。这种能力得益于结构化临床数据的获取，但只有在使用标准化表示形式存储和传输这些数据时才能得到优化。大多数电子病历和临床试验管理系统都不适合数据共享。在不久的将来，共享临床结果数据可能变得非常重要，因此必须改进这些功能。本文回顾了电子数据共享的基本概念，并在一个旨在支持造血细胞移植向国家数据库报告的数据共享项目中说明了它们的用途。
