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[先天性心脏病成人患者的随访]

[Follow up of adults with congenital heart disease].

作者信息

Miltner B, Piérard L, Seghaye M-C

机构信息

Service de Cardiologie, CHU de Liège.

出版信息

Rev Med Liege. 2012 Jul-Aug;67(7-8):407-12.

Abstract

During the last decades, the care of children with congenital heart disease has markedly improved. In consequence, the number of those who reach adulthood is continuously growing. In 2010, the European Society of Cardiology published guidelines for the management of grown-up congenital heart disease (GUCH) and recommended that each GUCH patient should be examined at least once in a specialized center. Due to their specific needs, this population requires specific and organized care. Indeed, GUCH patients do not only have significant extra-cardiac problems, but also present specific cardiac complications such as right ventricular failure, incisionnal arrhythmias. They may require repeated surgical and/ or percutaneous interventions. Since this emerging population is ageing, they also may suffer from arterial hypertension, diabetes and coronary artery disease. Last but not least, young women with congenital heart disease need specialized advice and care for contraception, follow-up during pregnancy and peripartal management. In order to optimize the follow-up of this growing population, a shared care model where cardiologists, specialized GUCH centers and other specialized centers for the treatment of extra-cardiac problems work in tight collaboration is recommended.

摘要

在过去几十年间,先天性心脏病患儿的护理有了显著改善。因此,成年先天性心脏病患者的数量持续增加。2010年,欧洲心脏病学会发布了成人先天性心脏病(GUCH)管理指南,并建议每位GUCH患者应至少在一家专科中心接受一次检查。由于他们有特殊需求,这一群体需要特殊且有组织的护理。事实上,GUCH患者不仅有严重的心脏外问题,还存在特定的心脏并发症,如右心室衰竭、切口性心律失常。他们可能需要反复进行手术和/或经皮介入治疗。由于这一新兴群体正在老龄化,他们还可能患有动脉高血压、糖尿病和冠状动脉疾病。最后但同样重要的是,患有先天性心脏病的年轻女性在避孕、孕期随访和围产期管理方面需要专业的建议和护理。为了优化对这一不断增长群体的随访,建议采用一种共享护理模式,即心脏病专家、专科GUCH中心和其他治疗心脏外问题的专科中心紧密合作。

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