Department of Otolaryngology-Head and Neck Surgery, University of Toronto, Toronto, Canada.
Head Neck. 2013 Sep;35(9):1221-31. doi: 10.1002/hed.23120. Epub 2012 Sep 18.
Several quality of life (QOL) instruments exist for skull base pathology, however, there have been no attempts to appraise and systematically review these instruments.
We systematically reviewed MEDLINE, EMBASE, Central, AMED, Health and Psychosocial Instruments, and PsychoInfo for anterior or central skull base QOL instruments to January 2010. We queried experts, bibliographies, and meeting proceedings from the North American Skull Base Society from 2005 to 2009. Included instruments were evaluated for instrument characteristics, item generation and reduction, field testing, and measurement properties using predefined criteria.
We identified 9 QOL instruments: 7 measuring QOL for pituitary pathology, 1 for midface pathology, and 1 for anterior skull base pathology. Eight of the 9 instruments have had some psychometric testing. None demonstrated all of the predefined psychometric properties.
There are several QOL instruments for patients with skull base pathology. None of these instruments met all predefined requirements, and further instrument development is needed.
有几种用于颅底疾病的生活质量（QOL）工具，但尚未对这些工具进行评估和系统评价。
我们系统地检索了 MEDLINE、EMBASE、CENTRAL、AMED、Health and Psychosocial Instruments 和 PsychoInfo 中 2010 年 1 月前用于前颅底或中颅底 QOL 工具的文献。我们还检索了 2005 年至 2009 年北美颅底学会的专家咨询、参考文献和会议记录。采用预先确定的标准，对纳入的工具进行了仪器特性、项目生成和减少、现场测试以及测量性能的评估。
我们确定了 9 种 QOL 工具：7 种用于测量垂体病变的 QOL，1 种用于测量中面部病变的 QOL，1 种用于测量前颅底病变的 QOL。9 种工具中的 8 种已进行了一些心理测量学测试。没有一种工具符合所有预先确定的心理测量学特性。
有几种用于颅底疾病患者的 QOL 工具。这些工具都没有满足所有预先确定的要求，需要进一步开发。
