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照顾患有老年痴呆症的亲人:从公众角度看聘请医疗保健代言人。

Caring for a loved one with Alzheimer's disease: views from the population about hiring a health care advocate.

机构信息

Department of Psychology, San Diego State University, San Diego, CA 92120, USA.

出版信息

Am J Alzheimers Dis Other Demen. 2012 Dec;27(8):579-83. doi: 10.1177/1533317512459795. Epub 2012 Sep 17.

DOI:10.1177/1533317512459795
PMID:22987858
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10845397/
Abstract

OBJECTIVE

Alzheimer's disease (AD) is associated with considerable caregiver and social burden. It is important to examine ways to minimize the negative effects of AD. Health care advocates (HCAs) may be one means of limiting the aversive effects of AD.

METHOD

Participants completed a short survey that assessed their perceptions of the impact of comorbid AD on health status and their likelihood of hiring an HCA to assist in managing it. A mediational model was proposed: cognitive status (AD vs cognitively healthy) was the independent variable, perception of severity was the mediator, and the probability of hiring an HCA was the dependent variable.

RESULTS

The results indicated that the relationship between cognitive status and probability of hiring an HCA was fully mediated by perceptions of severity.

CONCLUSION

This study demonstrated that participants appreciated the impact of AD on health status, and this translated into a greater probability of hiring an HCA.

摘要

目的

阿尔茨海默病(AD)与相当大的照顾者和社会负担有关。重要的是要研究如何将 AD 的负面影响降到最低。医疗保健倡导者(HCAs)可能是限制 AD 不良影响的一种手段。

方法

参与者完成了一项简短的调查,评估了他们对 AD 共病对健康状况的影响的看法,以及他们聘请 HCAs 协助管理的可能性。提出了一个中介模型:认知状态(AD 与认知健康)是自变量,感知严重程度是中介变量,聘请 HCAs 的可能性是因变量。

结果

结果表明,认知状态与聘请 HCAs 的可能性之间的关系完全由严重程度的感知所介导。

结论

本研究表明,参与者认识到 AD 对健康状况的影响,这转化为聘请 HCAs 的可能性更大。

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本文引用的文献

1
Dementelcoach: effect of telephone coaching on carers of community-dwelling people with dementia.痴呆症辅导员:电话辅导对社区居住的痴呆症患者照顾者的影响。
Int Psychogeriatr. 2012 Feb;24(2):212-22. doi: 10.1017/S1041610211001827.
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Spouses, adult children, and children-in-law as caregivers of older adults: a meta-analytic comparison.配偶、成年子女和姻亲作为老年人的照顾者:一项荟萃分析比较。
Psychol Aging. 2011 Mar;26(1):1-14. doi: 10.1037/a0021863.
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Relative importance of patient disease indicators on informal care and caregiver burden in Alzheimer's disease.阿尔茨海默病患者疾病指标对非正规护理和照顾者负担的相对重要性。
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Educational and formative training reduce stress in the caregivers of demented patients.教育和形成性培训可减少痴呆患者照顾者的压力。
Arch Gerontol Geriatr. 2009;49 Suppl 1:119-24. doi: 10.1016/j.archger.2009.09.020.
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Forecasting the global burden of Alzheimer's disease.预测阿尔茨海默病的全球负担。
Alzheimers Dement. 2007 Jul;3(3):186-91. doi: 10.1016/j.jalz.2007.04.381.
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The public's perceptions about cognitive health and Alzheimer's disease among the U.S. population: a national review.美国公众对认知健康和阿尔茨海默病的认知:一项全国性综述。
Gerontologist. 2009 Jun;49 Suppl 1:S3-11. doi: 10.1093/geront/gnp088.
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A review of programs to alleviate the burden of informal caregivers of dependent persons.对缓解依赖他人的无酬照料者负担的方案的综述。
Arch Gerontol Geriatr. 2010 May-Jun;50(3):254-9. doi: 10.1016/j.archger.2009.04.012. Epub 2009 May 28.
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2009 Alzheimer's disease facts and figures.2009年阿尔茨海默病事实与数据。
Alzheimers Dement. 2009 May;5(3):234-70. doi: 10.1016/j.jalz.2009.03.001.
10
Psychosocial intervention for family caregivers of people with dementia reduces caregiver's burden: development and effect after 6 and 12 months.针对痴呆症患者家庭照顾者的心理社会干预可减轻照顾者负担:干预措施的制定及其在6个月和12个月后的效果
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