NIHR Research Design Service for Yorkshire and the Humber.
Health Expect. 2015 Feb;18(1):44-57. doi: 10.1111/hex.12007. Epub 2012 Oct 4.
To characterise the literature on public involvement in health research published between 1995 and 2009.
Papers were identified from three systematic reviews, one narrative review and two bibliographies. The analysis identified journals where papers were published; countries of lead authors; types of public involved; health topic areas; and stages of research involving the public. Papers were also classified as to whether they were literature reviews or empirical studies; focused on participatory/action research; were qualitative, quantitative or mixed-method. The number of papers published per year was also examined.
Of the 683 papers identified, 297 were of USA origin and 223 were of UK origin. Of the 417 empirical papers: (i) participatory/action research approach was dominant, together with qualitative data collection methods; (ii) the stage of research the public was most involved was question identification; (iii) indigenous groups were most commonly involved; (iv) mental health was the most common health topic. Published studies peaked in 2006.
The present study identifies publication patterns in public involvement in health research and provides evidence to suggest that researchers increasingly are 'walking the walk' with respect to public involvement, with empirical studies consistently out-numbering literature reviews from 1998.
描述 1995 年至 2009 年间发表的公众参与健康研究文献。
从三篇系统评价、一篇叙述性评价和两份文献目录中确定了论文。分析确定了论文发表的期刊；主要作者的国家；参与的公众类型；健康主题领域；以及公众参与的研究阶段。论文还根据是否为文献综述或实证研究、是否关注参与式/行动研究、是定性、定量还是混合方法进行了分类。每年发表的论文数量也进行了检查。
在确定的 683 篇论文中，297 篇来自美国，223 篇来自英国。在 417 篇实证论文中：（i）参与式/行动研究方法占主导地位，同时采用定性数据收集方法；（ii）公众参与最多的研究阶段是问题确定；（iii）原住民群体最常参与；（iv）心理健康是最常见的健康主题。发表的研究在 2006 年达到高峰。
本研究确定了公众参与健康研究的发表模式，并提供了证据表明，研究人员在公众参与方面越来越“言行一致”，实证研究从 1998 年开始就一直超过文献综述。
