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家庭支持的悖论:感染 HIV 的肺结核患者对将家人和朋友纳入其治疗的担忧。

The paradox of family support: concerns of tuberculosis-infected HIV patients about involving family and friends in their treatment.

机构信息

Institute of Child Health, College of Medicine, University of Ibadan, Nigeria.

出版信息

AIDS Patient Care STDS. 2012 Nov;26(11):674-80. doi: 10.1089/apc.2011.0304. Epub 2012 Oct 16.

Abstract

Despite the widely documented evidence that family support improves adherence to HIV treatment, some studies have reported no benefit or even a negative association between family support and adherence. This study reexamined the role of family support in treatment adherence to find out the circumstances under which family support for HIV and tuberculosis coinfected patients promotes or hinders treatment adherence in Cross River State, Nigeria. We conducted eight focus group discussions (FGDs) and four case histories with coinfected patients. In addition, 21 in-depth interviews (IDIs) were conducted with: 8 family members, 6 friends, and 7 care providers. Data were analyzed in a thematic format with the aid of NVIVO software. Overall, family support promotes adherence in coinfected patients. Family support may, however, have a negative effect on adherence when the recipient perceives that the support is given with ulterior motives (e.g., gossiping about them and becoming indebted to the support givers) and when the recipient is the primary breadwinner and feels that this role is being undermined. Family support is useful as a tool for scaling up adherence but the usefulness is context-specific and mediated by the patient's subjective interpretation of the support givers' motives.

摘要

尽管有大量文献证明家庭支持可以提高 HIV 治疗的依从性,但有些研究报告称,家庭支持与依从性之间没有任何益处,甚至存在负面关联。本研究重新审视了家庭支持在治疗依从性中的作用,以了解在尼日利亚克罗斯河州,家庭支持如何促进或阻碍 HIV 和结核病合并感染患者的治疗依从性。我们对合并感染患者进行了 8 次焦点小组讨论(FGD)和 4 个案例研究。此外,我们还对 8 名家庭成员、6 名朋友和 7 名护理提供者进行了 21 次深入访谈(IDI)。数据以主题格式进行分析,并借助 NVIVO 软件进行。总体而言,家庭支持可以促进合并感染患者的治疗依从性。然而,当患者认为支持是出于不可告人的动机(例如,八卦他们并因此欠支持提供者的人情),并且当患者是主要的养家糊口者并感到自己的角色受到损害时,家庭支持可能会对治疗依从性产生负面影响。家庭支持是一种提高治疗依从性的有用工具,但这种有用性是特定于情境的,并受到患者对支持提供者动机的主观解释的影响。

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