School of Nursing, Fujian Medical University, Fuzhou, China; School of Nursing, University of California Los Angeles, Los Angeles, CA, USA.
School of Nursing, University of California Los Angeles, Los Angeles, CA, USA.
Appl Nurs Res. 2021 Apr;58:151395. doi: 10.1016/j.apnr.2021.151395. Epub 2021 Jan 7.
When coping with HIV-related challenges, family support is the first line that Asian Americans living with HIV (AALHIV) lean on; however, few studies have explored the dyadic aspects of family support among AALHIV. We aimed to explore the dyadic aspects of family support among AALHIV and their family caregivers.
From September 2017 to January 2020, we recruited 18 dyads among AALHIV and their caregivers in Los Angeles and New York City by the purposive sampling method. Using qualitative dyadic analysis of semi-structured, in-depth interviews, we explored dyadic aspects of family support among participants based on Fitch's Supportive Care Framework.
We found that AALHIV obtained support from family caregivers to cover the domains of their physical, psychological, spiritual, informational, social, and practical supportive care. This dyadic analysis indicated congruence in most supportive care; however, there were also dissimilar in the support perceptions.
Our findings exemplify the physical, psychological, spiritual, informational, social, and practical support from AALHIV and their family caregivers. When developing a culturally sensitive intervention for AALHIV, we need to consider the different aspects of the support. Especially, family support can enhance patients-providers' relationships as well as health engagement with HIV care.
在应对与 HIV 相关的挑战时,美籍亚裔艾滋病毒感染者(AALHIV)首先依靠的是家庭支持;然而,很少有研究探讨 AALHIV 及其家庭照顾者之间的家庭支持的双重方面。我们旨在探索 AALHIV 及其家庭照顾者之间的家庭支持的双重方面。
从 2017 年 9 月到 2020 年 1 月,我们通过目的性抽样法在洛杉矶和纽约市招募了 18 对 AALHIV 和他们的照顾者。我们使用半结构式深入访谈的定性对偶分析,根据 Fitch 的支持性护理框架,探讨了参与者之间的家庭支持的对偶方面。
我们发现,AALHIV 从家庭照顾者那里获得了支持,涵盖了他们身体、心理、精神、信息、社会和实际支持性护理的各个领域。这种对偶分析表明,在大多数支持性护理方面存在一致性;然而,在支持认知方面也存在差异。
我们的研究结果体现了 AALHIV 及其家庭照顾者在身体、心理、精神、信息、社会和实际方面的支持。在为 AALHIV 制定文化敏感性干预措施时,我们需要考虑支持的不同方面。特别是,家庭支持可以增强患者与提供者的关系,以及他们对艾滋病毒护理的健康参与。