Konradsen Hanne, Lillebaek Troels, Wilcke Torgny, Lomborg Kirsten
Gentofte University Hospital, Hellerup, Denmark.
International Reference Laboratory of Mycobacteriology, Statens Serum Institut, Copenhagen, Denmark.
Int J Qual Stud Health Well-being. 2014 Apr 23;9:23644. doi: 10.3402/qhw.v9.23644. eCollection 2014.
Tuberculosis (TB) is a disease which affects people worldwide, but there is knowledge lacking about patients' experiences in low-prevalence and high-income countries.
To provide a theoretical framework for the process of being diagnosed with tuberculosis in a Danish setting.
A grounded theory design with field studies and qualitative interviews, following the recommendations from Glaser and Strauss.
A process of being publicly diagnosed was identified, which developed during the patient's trajectory from being on the way to becoming a patient, becoming a patient with TB, and finally being in medical treatment. Before being diagnosed with TB, patients were weighing between biding their time and deciding to undergo an examination. Social pressure and feelings of social responsibility tended to affect the decision. Having undergone the examination(s), the patients were publicly diagnosed. Being publicly diagnosed meant changing social interactions and fighting to regain control.
Findings offer new insight and an empirically derived basis for developing interventions aimed at reducing the burden of being diagnosed with tuberculosis and increasing the wellbeing of the patients.
结核病在全球范围内影响着人们,但在低发病率和高收入国家,人们对患者的经历了解不足。
为丹麦背景下结核病诊断过程提供一个理论框架。
采用扎根理论设计,进行实地研究和定性访谈,遵循格拉泽和施特劳斯的建议。
确定了一个公开诊断的过程,该过程在患者从即将成为患者、成为结核病患者到最终接受治疗的轨迹中发展。在被诊断为结核病之前,患者在等待时机和决定接受检查之间权衡。社会压力和社会责任感往往会影响这一决定。接受检查后,患者被公开诊断。被公开诊断意味着社交互动的改变以及为重新获得控制权而斗争。
研究结果为制定旨在减轻结核病诊断负担和提高患者福祉的干预措施提供了新的见解和实证依据。