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2
[Continued problems with tuberculosis among Danes and Greenlanders in Denmark and the need for reinforced control--a systematic review].[丹麦及丹麦境内格陵兰人结核病持续存在的问题及加强防控的必要性——一项系统综述]
Ugeskr Laeger. 2012 Oct 29;174(44):2696-701.
3
The paradox of family support: concerns of tuberculosis-infected HIV patients about involving family and friends in their treatment.家庭支持的悖论:感染 HIV 的肺结核患者对将家人和朋友纳入其治疗的担忧。
AIDS Patient Care STDS. 2012 Nov;26(11):674-80. doi: 10.1089/apc.2011.0304. Epub 2012 Oct 16.
4
Minimum package for cross-border TB control and care in the WHO European region: a Wolfheze consensus statement.世界卫生组织欧洲区域跨境结核病控制和关怀最低一揽子计划:沃尔赫泽共识声明。
Eur Respir J. 2012 Nov;40(5):1081-90. doi: 10.1183/09031936.00053012. Epub 2012 May 31.
5
Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients?结核病服务中的语言:我们能否改用以患者为中心的术语,摒弃将责任归咎于患者的模式?
Int J Tuberc Lung Dis. 2012 Jun;16(6):714-7. doi: 10.5588/ijtld.11.0635.
6
Migrant tuberculosis: the extent of transmission in a low burden country.移民结核病:在低负担国家的传播程度。
BMC Infect Dis. 2012 Mar 18;12:60. doi: 10.1186/1471-2334-12-60.
7
Humiliation or care? A qualitative study of patients' and health professionals' experiences with tuberculosis treatment in Norway.羞辱还是关怀?一项关于挪威患者及医护人员结核病治疗经历的定性研究。
Scand J Caring Sci. 2012 Jun;26(2):313-23. doi: 10.1111/j.1471-6712.2011.00935.x. Epub 2011 Nov 2.
8
Educational inequalities in tuberculosis mortality in sixteen European populations.结核病死亡率的 16 个欧洲人群中的教育不平等。
Int J Tuberc Lung Dis. 2011 Nov;15(11):1461-7, i. doi: 10.5588/ijtld.10.0252.
9
A qualitative review: the stigma of tuberculosis.定性综述:结核病的污名化。
J Clin Nurs. 2011 Jul;20(13-14):1961-70. doi: 10.1111/j.1365-2702.2010.03516.x. Epub 2010 Oct 29.
10
'Containment' as an analytical framework for understanding patient delay: a qualitative study of cancer patients' symptom interpretation processes.作为理解患者延误的分析框架的“遏制”:对癌症患者症状解释过程的定性研究。
Soc Sci Med. 2010 Jul;71(2):378-385. doi: 10.1016/j.socscimed.2010.03.044. Epub 2010 Apr 27.

被公开诊断:一项对丹麦结核病患者的扎根理论研究。

Being publicly diagnosed: a grounded theory study of Danish patients with tuberculosis.

作者信息

Konradsen Hanne, Lillebaek Troels, Wilcke Torgny, Lomborg Kirsten

机构信息

Gentofte University Hospital, Hellerup, Denmark.

International Reference Laboratory of Mycobacteriology, Statens Serum Institut, Copenhagen, Denmark.

出版信息

Int J Qual Stud Health Well-being. 2014 Apr 23;9:23644. doi: 10.3402/qhw.v9.23644. eCollection 2014.

DOI:10.3402/qhw.v9.23644
PMID:24766675
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4000426/
Abstract

INTRODUCTION

Tuberculosis (TB) is a disease which affects people worldwide, but there is knowledge lacking about patients' experiences in low-prevalence and high-income countries.

AIM

To provide a theoretical framework for the process of being diagnosed with tuberculosis in a Danish setting.

METHOD

A grounded theory design with field studies and qualitative interviews, following the recommendations from Glaser and Strauss.

RESULT

A process of being publicly diagnosed was identified, which developed during the patient's trajectory from being on the way to becoming a patient, becoming a patient with TB, and finally being in medical treatment. Before being diagnosed with TB, patients were weighing between biding their time and deciding to undergo an examination. Social pressure and feelings of social responsibility tended to affect the decision. Having undergone the examination(s), the patients were publicly diagnosed. Being publicly diagnosed meant changing social interactions and fighting to regain control.

CONCLUSION

Findings offer new insight and an empirically derived basis for developing interventions aimed at reducing the burden of being diagnosed with tuberculosis and increasing the wellbeing of the patients.

摘要

引言

结核病在全球范围内影响着人们,但在低发病率和高收入国家,人们对患者的经历了解不足。

目的

为丹麦背景下结核病诊断过程提供一个理论框架。

方法

采用扎根理论设计,进行实地研究和定性访谈,遵循格拉泽和施特劳斯的建议。

结果

确定了一个公开诊断的过程,该过程在患者从即将成为患者、成为结核病患者到最终接受治疗的轨迹中发展。在被诊断为结核病之前,患者在等待时机和决定接受检查之间权衡。社会压力和社会责任感往往会影响这一决定。接受检查后,患者被公开诊断。被公开诊断意味着社交互动的改变以及为重新获得控制权而斗争。

结论

研究结果为制定旨在减轻结核病诊断负担和提高患者福祉的干预措施提供了新的见解和实证依据。