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反思性研究:支持从事生命末期沟通分析的研究人员。

Reflective research: supporting researchers engaged in analyzing end-of-life communication.

机构信息

University of Utah College of Nursing, Salt Lake City, UT 84112-5880, USA.

出版信息

Patient Educ Couns. 2013 Apr;91(1):126-8. doi: 10.1016/j.pec.2012.09.007. Epub 2012 Oct 23.

Abstract

OBJECTIVES

The objectives of this commentary are to: (1) identify unique aspects of communication at end-of-life as compared to more commonly studied healthcare encounters; (2) outline challenges and opportunities research team members may encounter in coding and analyzing end-of-life communication; and (3) offer recommendations for quantitative communication research teams. This commentary is based on ours and others' experiences in studying the communication among patients with terminal illnesses, their families and their providers. Provider-patient/caregiver communication at end-of-life has some differences as compared to other forms of healthcare communication and, thus, has implications for researcher response. Challenges and opportunities for research team members include gaining new knowledge, developing feelings of attachment to study participants, burn-out, and emotional and existential impact on personal life. Practical and psychological considerations for conducting end-of-life communication research are discussed.

CONCLUSIONS

Researchers engaged in the study of end-of-life interactions may experience unique challenges, potentially compromising the validity of the research results and interpretation of communication processes. A balance between likely coder emotions and objectivity must be achieved.

IMPLICATIONS

Anticipating and facilitating the research teams' reactions to end-of-life interactions while still maintaining scientific standards may be achieved by using a reflective, mindful approach.

摘要

目的

本评论的目的是:(1) 确定生命末期沟通与更常见的医疗保健接触相比的独特方面;(2) 概述研究团队成员在对生命末期沟通进行编码和分析时可能遇到的挑战和机遇;(3) 为定量沟通研究团队提供建议。本评论基于我们和其他研究人员在研究终末期患者、他们的家人和他们的提供者之间的沟通方面的经验。与其他形式的医疗保健沟通相比,医患/照顾者在生命末期的沟通存在一些差异,因此对研究人员的反应有影响。研究团队成员面临的挑战和机遇包括获得新知识、对研究参与者产生依恋感、倦怠以及对个人生活的情感和存在影响。讨论了进行生命末期沟通研究的实际和心理考虑因素。

结论

从事生命末期互动研究的研究人员可能会遇到独特的挑战,这可能会影响研究结果的有效性和沟通过程的解释。必须在编码员的情绪和客观性之间取得平衡。

影响

通过使用反思性、有意识的方法,可以预测和促进研究团队对生命末期互动的反应,同时仍保持科学标准。

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