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应对大型通信数据集的方法学挑战:收集和编码居家临终关怀癌症护理中的纵向互动

Addressing Methodological Challenges in Large Communication Data Sets: Collecting and Coding Longitudinal Interactions in Home Hospice Cancer Care.

作者信息

Reblin Maija, Clayton Margaret F, John Kevin K, Ellington Lee

机构信息

a Department of Health Outcomes & Behavior , Moffitt Cancer Center.

b College of Nursing , University of Utah.

出版信息

Health Commun. 2016 Jul;31(7):789-97. doi: 10.1080/10410236.2014.1000480. Epub 2015 Nov 18.

Abstract

In this article, we present strategies for collecting and coding a large longitudinal communication data set collected across multiple sites, consisting of more than 2000 hours of digital audio recordings from approximately 300 families. We describe our methods within the context of implementing a large-scale study of communication during cancer home hospice nurse visits, but this procedure could be adapted to communication data sets across a wide variety of settings. This research is the first study designed to capture home hospice nurse-caregiver communication, a highly understudied location and type of communication event. We present a detailed example protocol encompassing data collection in the home environment, large-scale, multisite secure data management, the development of theoretically-based communication coding, and strategies for preventing coder drift and ensuring reliability of analyses. Although each of these challenges has the potential to undermine the utility of the data, reliability between coders is often the only issue consistently reported and addressed in the literature. Overall, our approach demonstrates rigor and provides a "how-to" example for managing large, digitally recorded data sets from collection through analysis. These strategies can inform other large-scale health communication research.

摘要

在本文中,我们介绍了用于收集和编码一个跨多个地点收集的大型纵向沟通数据集的策略,该数据集包含来自约300个家庭的2000多个小时的数字音频记录。我们在实施一项关于癌症居家临终关怀护士家访期间沟通情况的大规模研究的背景下描述了我们的方法,但这个程序可以适用于各种环境下的沟通数据集。这项研究是第一项旨在捕捉居家临终关怀护士与护理人员沟通情况的研究,这是一个研究严重不足的沟通地点和沟通事件类型。我们展示了一个详细的示例方案,包括家庭环境中的数据收集、大规模多地点安全数据管理、基于理论的沟通编码的开发,以及防止编码员偏差和确保分析可靠性的策略。虽然这些挑战中的每一个都有可能破坏数据的效用,但编码员之间的可靠性往往是文献中唯一持续报告和解决的问题。总体而言,我们的方法展示了严谨性,并为管理从收集到分析的大型数字记录数据集提供了一个“操作指南”示例。这些策略可为其他大规模健康沟通研究提供参考。

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