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独特且普遍的障碍:为智障老年患者提供临终关怀。

Unique and universal barriers: hospice care for aging adults with intellectual disability.

机构信息

University of Colorado, CO, USA.

出版信息

Am J Intellect Dev Disabil. 2012 Nov;117(6):509-32. doi: 10.1352/1944-7558-117.6.509.

Abstract

As life expectancy of people with intellectual disability (ID) has increased, there has been a concurrent increase in age-related illnesses and conditions similar to that of the general population. These circumstances result in people with ID dying from typical life-ending conditions, and thus, they require similar end-of-life services such as palliative and hospice care. Although there are notable barriers to hospice for all, people with ID face additional challenges in accessing the benefits of these services. This article presents a review of the literature on these issues, underscoring the multiple challenges and the importance of a more collaborative approach between hospice and palliative care workers with people with ID, their families, and other important stakeholders.

摘要

随着智障人士(ID)的预期寿命延长,与年龄相关的疾病和与普通人群相似的疾病也随之增加。这些情况导致 ID 患者死于典型的绝症,因此,他们需要类似的临终服务,如姑息治疗和临终关怀。尽管所有人都面临着明显的临终关怀障碍,但 ID 患者在获得这些服务的益处方面还面临着额外的挑战。本文综述了相关文献,强调了 ID 患者、他们的家人和其他重要利益相关者在面临多重挑战的情况下,姑息治疗和临终关怀工作者之间更需要协作的重要性。

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