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Schizophr Bull. 2013 Nov;39(6):1307-17. doi: 10.1093/schbul/sbs121. Epub 2012 Nov 20.
Caring for young people with first-episode psychosis (FEP) is challenging and can adversely affect carer well-being, with limited evidence-based support materials available. We aimed to examine whether completion of a self-directed problem-solving bibliotherapy among carers of young people with FEP led to a better experience of caring, less distress and expressed emotion, and better general health than carers who only received treatment as usual (TAU). A randomized controlled trial was conducted across two early-intervention psychosis services in Melbourne, Australia. A total of 124 carers were randomized to problem-solving bibliotherapy intervention (PSBI) or TAU and assessed at baseline, 6-week and 16-week follow-up. Intent-to-treat analyses were carried out and indicated that recipients of PSBI had a more favorable experience of caring than those receiving TAU, and these effects were sustained at both follow-up time points. Across the other measures, both groups demonstrated improvements by week 16, although the PBSI group tended to improve earlier. The PSBI group experienced a greater reduction in negative emotional evaluations of the need to provide additional support to young people with FEP than the TAU group by week 6, while the level of psychological distress decreased at a greater rate from baseline to 6 weeks in the PSBI compared with the TAU group. These findings support the use of problem-solving bibliotherapy for first-time carers, particularly as a cost-effective adjunct to TAU.
照顾首次发作精神分裂症(FEP)的年轻人具有挑战性,并且会对照顾者的健康产生不利影响,而目前可用的基于证据的支持材料有限。我们旨在研究,与仅接受常规治疗(TAU)的照顾者相比,完成针对 FEP 年轻患者照顾者的自我指导问题解决自助疗法后,是否会带来更好的照顾体验、更少的痛苦和表达的情绪、以及更好的整体健康。这项随机对照试验在澳大利亚墨尔本的两个早期干预精神病服务机构进行。共有 124 名照顾者被随机分配到问题解决自助疗法干预(PSBI)或 TAU 组,并在基线、6 周和 16 周随访时进行评估。意向治疗分析表明,接受 PSBI 的患者比接受 TAU 的患者有更好的照顾体验,并且这些效果在两个随访时间点都得到了维持。在其他指标方面,两组在第 16 周时都表现出了改善,尽管 PSBI 组的改善更早。与 TAU 组相比,PSBI 组在第 6 周时对需要为 FEP 年轻人提供额外支持的负面情绪评价的降低幅度更大,而 PSBI 组从基线到 6 周时的心理困扰水平下降速度比 TAU 组更快。这些发现支持将问题解决自助疗法用于首次照顾者,特别是作为 TAU 的一种具有成本效益的辅助手段。