Department of Health Promotion and Education, Maastricht University, School for Public Health and Primary Care (CAPHRI), Maastricht, The Netherlands.
Best Pract Res Clin Rheumatol. 2012 Oct;26(5):705-20. doi: 10.1016/j.berh.2012.07.011.
In this chapter, we discuss challenges in collecting data on outcomes of patients who receive usual rheumatology care. We present results of the multinational Quantitative Monitoring of Patients with Rheumatoid Arthritis (QUEST RA) study which is a successful example of quantitative clinical measuring of RA as part of routine clinical care in a large number of centres across more than 30 countries. We further elaborate on what we can learn from these data about inequalities and inequities, both within and between countries. Frameworks to understand socioeconomic determinants of health are presented and, in addition to the QUEST RA data, the literature is summarised to provide further evidence on how socioeconomic determinants can contribute to health disparities of patients within and between countries.
在本章中,我们讨论了在收集接受常规风湿病学护理的患者结局数据方面所面临的挑战。我们展示了多国家类风湿关节炎患者定量监测(QUEST RA)研究的结果,该研究是成功的范例,将 RA 的定量临床测量作为常规临床护理的一部分,在 30 多个国家的众多中心实施。我们进一步详细阐述了从这些数据中可以了解到哪些国家内部和国家之间的不平等和不公平现象。我们提出了理解健康的社会经济决定因素的框架,并结合 QUEST RA 数据,对文献进行了总结,进一步证明了社会经济决定因素如何导致国家内部和国家之间患者的健康差距。