患者及社区领袖对在一家专门诊治风湿性疾病的多元化城市诊所开展健康行为研究的看法。
Patients' and community leaders' perceptions regarding conducting health behavior research in a diverse, urban clinic specializing in rheumatic diseases.
作者信息
Wallen Gwenyth R, Middleton Kimberly R, Miller-Davis Claiborne, Tataw-Ayuketah Gladys, Todaro Alyssa, Rivera-Goba Migdalia, Mittleman Barbara B
出版信息
Prog Community Health Partnersh. 2012 Winter;6(4):405-15. doi: 10.1353/cpr.2012.0052.
BACKGROUND
Disparities in the incidence, prevalence, severity, care, and outcomes for rheumatic diseases exist among racial and ethnic groups compared with White Americans.
OBJECTIVE
This paper describes a community-based participatory research (CBPR) approach engaging researchers, community leaders, and patients in purposeful dialogues related to the implementation of health behavior research in an urban rheumatic disease clinic.
METHODS
Seven focused discussions were led in either English or Spanish. Discussions were audiotaped and transcribed verbatim.
RESULTS
Six community leaders and nine patients participated in the seven scheduled focused discussions. Transcripts uncovered five major themes that assisted with study design: trust, patient-provider relationship, study implementation suggestions, decreased functional capacity, and access to healthcare.
CONCLUSIONS
Engaging community partners and patients in informal and formal discussions from early phases of research design through implementation, followed by systematic application of these insights, may serve to accelerate the potential for translation from findings into improved clinical practice and optimal outcomes.
背景
与美国白人相比，不同种族和族裔群体在风湿性疾病的发病率、患病率、严重程度、治疗及预后方面存在差异。
目的
本文描述了一种基于社区的参与性研究（CBPR）方法，该方法让研究人员、社区领袖和患者参与到与在城市风湿性疾病诊所开展健康行为研究相关的有目的的对话中。
方法
用英语或西班牙语进行了七次重点讨论。讨论进行了录音并逐字转录。
结果
六位社区领袖和九名患者参与了七次预定的重点讨论。转录文本揭示了有助于研究设计的五个主要主题：信任、医患关系、研究实施建议、功能能力下降和医疗保健可及性。
结论
让社区合作伙伴和患者从研究设计的早期阶段到实施阶段参与非正式和正式讨论，然后系统地应用这些见解，可能有助于加快将研究结果转化为改善临床实践和实现最佳结果的可能性。
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