National Taiwan University, Taiwan.
J Health Psychol. 2013 Dec;18(12):1572-81. doi: 10.1177/1359105312465915. Epub 2012 Dec 6.
This qualitative research explored how cancer patients' writing and reading on the Internet play a role in their illness experience. Focus-group interviews were conducted, with 34 cancer patients participating. A grounded qualitative analysis method was applied to analyze the interview transcripts. The results show that by writing personal blogs, cancer patients reconstructed their life story, expressed their closure of life, and expected to be remembered after death. Reading fellow cancer patients' stories online significantly influenced cancer patients' perceptions and expectations of their own illness prognosis, and that influence was sometimes greater than that of the doctors' influence.
这项定性研究探讨了癌症患者在互联网上的写作和阅读如何影响他们的疾病体验。研究采用焦点小组访谈的方式,共有 34 名癌症患者参与。运用扎根理论的定性分析方法对访谈记录进行了分析。研究结果表明,通过撰写个人博客,癌症患者重构了自己的生活故事,表达了对生命的终结,以及对死后被人铭记的期望。在线阅读其他癌症患者的故事,显著影响了癌症患者对自身疾病预后的认知和期望,其影响有时甚至大于医生的影响。