Baylor College of Medicine, Houston, TX, USA.
Med Care Res Rev. 2013 Feb;70(1 Suppl):3S-13S. doi: 10.1177/1077558712468491. Epub 2012 Dec 6.
The near ubiquitous access to information is transforming the roles and relationships among clinical professionals, patients, and their care givers in nearly all aspects of healthcare. Informed patients engage their physicians in conversations about their conditions, options and the tradeoffs among diagnostic and therapeutic benefits and harms. The processes of care today increasingly and explicitly integrate exploration of patient values and preferences as patients and clinicians jointly engage in reaching decisions about care. The informed patient of today who can understand and use scientific information can participate as an equal partner with her clinician. Others with beliefs or educational, cultural, or literacy backgrounds that pose challenges to comprehending and applying evidence may face disenfranchisement. These barriers are significant enough, even in the face of certainty of evidence, that clinicians and investigators have given much thought to how best to engage all patients in decision making. However, barriers remain, as most decision making must occur in settings where uncertainty, if not considerable uncertainty, accompanies any statement of what we know. In September 2011, health care and health communication experts came together in Rockville, Maryland under the auspices of the Agency for Healthcare Research and Quality (AHRQ) John M. Eisenberg Center for Clinical Decisions and Communications Science Annual Meeting to explore the challenges of differing levels of evidence in promoting shared decisions and to propose strategies for going forward in addressing these challenges. Eight scholarly papers emerged, and with this introductory article, comprise this special issue of Medical Care Research and Review.
无处不在的信息获取正在改变临床专业人员、患者及其护理人员在医疗保健几乎所有方面的角色和关系。知情的患者会与医生就自己的病情、治疗方案以及诊断和治疗的利弊权衡进行沟通。如今,护理流程越来越明确地将患者价值观和偏好的探索纳入其中,患者和临床医生共同参与决策。今天的知情患者能够理解和使用科学信息,因此可以作为其临床医生的平等伙伴参与其中。而那些信仰、教育、文化或识字背景可能对理解和应用证据构成挑战的人可能会面临被剥夺权利的困境。即使在有确凿证据的情况下,这些障碍仍然存在,这促使临床医生和研究人员认真思考如何让所有患者都能更好地参与决策制定。然而,障碍依然存在,因为在大多数情况下,决策必须在不确定性存在的情况下做出,如果不是相当大的不确定性,那么我们对所了解的情况的任何陈述都将伴随不确定性。2011 年 9 月,医疗保健和健康传播专家在马里兰州罗克维尔聚集一堂,在医疗保健研究与质量局(AHRQ)约翰·M·艾森伯格临床决策和传播科学中心年度会议的主持下,探讨了不同证据水平在促进共同决策方面所面临的挑战,并提出了应对这些挑战的策略。八篇学术论文应运而生,本文作为引言,构成了本期《医疗保健研究与评论》的特刊。