Pastor Diane K, Moore Geraldine
Adult Health Nursing Program, Department of Graduate Studies in Advanced Practice Nursing, School of Nursing, Stony Brook University, Stony Brook, New York 11794-8240, USA.
Home Healthc Nurse. 2013 Jan;31(1):29-36; quiz 37-8. doi: 10.1097/NHH.0b013e3182778ee3.
Chronic heart failure (HF) is a growing public health concern in Western nations. Incidence of HF increases with age, and demographics in the United States support a growing HF population. Annually, more than 100,000 people are admitted to hospitals because of HF. Patients with chronic HF experience a highly morbid and life-limiting illness while suffering from substantial physical and psychosocial burdens. What is the state of the science regarding the use of palliative care for community-dwelling adult patients with HF? A review of the scientific literature was conducted using the key words "palliative care" and "heart failure" in several electronic databases (CINAHL, Medline, Proquest) from October 15 to November 15, 2011. Eleven of the 16 articles found indicated that palliative care is underused by HF patients. There is a large unmet care need for adults with chronic HF and their family caregivers. Home healthcare professionals develop and maintain relationships with community-dwelling patients with chronic HF over the course of their HF illness trajectory. Home healthcare professionals are in a unique position to identify HF patients who may benefit from palliative care programs delivered across care settings in the community. By developing ongoing relationships with patients and their family caregivers, we are able to focus on the complete care needs of this patient population and assist them with advanced care planning, psychological and social issues, and symptom management. We can also improve communication among care providers and patients/families to identify goals of care along the trajectory of HF illness.
慢性心力衰竭(HF)在西方国家正日益成为一个备受关注的公共卫生问题。心力衰竭的发病率随年龄增长而升高,美国的人口统计数据显示心力衰竭患者人数在不断增加。每年,超过10万人因心力衰竭住院。慢性心力衰竭患者不仅经历着一种高发病率且危及生命的疾病,还承受着巨大的身体和心理社会负担。对于社区居住的成年心力衰竭患者,姑息治疗的科学现状如何?2011年10月15日至11月15日期间,在几个电子数据库(CINAHL、Medline、Proquest)中使用关键词“姑息治疗”和“心力衰竭”对科学文献进行了检索。检索到的16篇文章中有11篇表明心力衰竭患者对姑息治疗的利用不足。慢性心力衰竭成年患者及其家庭照护者存在大量未满足的照护需求。家庭医疗保健专业人员在慢性心力衰竭患者的疾病发展过程中与他们建立并维持关系。家庭医疗保健专业人员处于一个独特的位置,能够识别出可能从社区各医疗机构提供的姑息治疗项目中受益的心力衰竭患者。通过与患者及其家庭照护者建立持续的关系,我们能够关注这一患者群体的全面照护需求,并协助他们进行高级护理规划、处理心理和社会问题以及症状管理。我们还可以改善医疗服务提供者与患者/家属之间的沟通,以确定心力衰竭疾病发展过程中的照护目标。