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布列塔尼地区脑瘫患儿中医疗和辅助医疗人员参与情况的调查:初步结果。

A survey of medical and paramedical involvement in children with cerebral palsy in Britanny: preliminary results.

机构信息

Service de médecine physique et de réadaptation, CHU Morvan, 5, avenue Foch, 29609 Brest cedex, France.

出版信息

Ann Phys Rehabil Med. 2013 May;56(4):253-67. doi: 10.1016/j.rehab.2012.11.003. Epub 2012 Dec 14.

Abstract

AIM

To describe the amount of medical and paramedical involvement in a sample of Breton children with cerebral palsy as a function of the Gross Motor Function Classification System (GMFCS).

MATERIALS AND METHODS

This is a transversal descriptive study. All children with cerebral palsy in Brittany were eligible. Parents who accepted to participate were asked to fill in a questionnaire regarding medical and paramedical involvement with their child.

RESULTS

One hundred and thirty-three parents participated. 40.6% of the children were level I on the GMFCS, 20.3% II, 12.03% III, 13.53% IV and 13.53% were level V. Thirty-nine percent of the children took at least one medication (of which 43% were antiepileptic drugs). 33.1% of the children had received at least one injection of botulinum toxin within the year. Forty-four percent used a mobility aid. Eighty-five percent of the children had at least one orthotic device, most often a night ankle-foot orthosis. The median number of rehabilitation sessions per week was 3.85 [0.5-11.5]. The frequency and type of sessions were mostly related to the GMFCS level.

CONCLUSION

This study reports high levels of medical and paramedical involvement. Studies must attempt to define optimal practice.

摘要

目的

描述布雷顿地区脑瘫儿童样本中医疗和辅助医疗的参与程度,作为粗大运动功能分类系统(GMFCS)的一个功能。

材料和方法

这是一项横断面描述性研究。布列塔尼所有脑瘫儿童都符合条件。接受参与的父母被要求填写一份关于他们孩子接受医疗和辅助医疗的问卷。

结果

共有 133 名家长参与。GMFCS 水平 I 的儿童占 40.6%,II 级占 20.3%,III 级占 12.03%,IV 级占 13.53%,V 级占 13.53%。39%的儿童至少服用一种药物(其中 43%是抗癫痫药物)。33.1%的儿童在一年内至少接受过一次肉毒毒素注射。44%的人使用了移动辅助工具。85%的儿童至少有一个矫形器,最常见的是夜间踝足矫形器。每周康复治疗的中位数为 3.85[0.5-11.5]次。治疗的频率和类型主要与 GMFCS 水平有关。

结论

本研究报告了高度的医疗和辅助医疗参与度。研究必须试图确定最佳实践。

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