Hsieh Ru-Lan, Hsueh Yu-Mei, Huang Hsiao-Yuan, Lin Ming-I, Tseng Wei-Che, Lee Wen-Chung
Department of Physical Medicine and Rehabilitation, Shin Kong Wu Ho-Su Memorial Hospital, Taipei, Taiwan.
J Paediatr Child Health. 2013 Feb;49(2):E116-21. doi: 10.1111/jpc.12081. Epub 2013 Jan 14.
The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family.
In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical development were recruited. We administered the Pediatric Quality of Life Inventory (PedsQL)-Generic Core Scale and Pediatric Outcomes Data Collection Instrument to parents to evaluate the QOL and health status of their children. Parents were evaluated by World Health Organization-Quality of Life-Brief Version, PedsQL-Family Impact Module, Hospital Anxiety and Depression Scale, and PedsQL-Health satisfaction to assess the impacts of this situation on the family. Variables related to QOL and functions of children with unclassified developmental delays were analysed by stepwise regression analysis.
Comparing children with typical development, children with unclassified developmental delays had a significantly lower QOL (including both psychosocial and physical components) and health status. Their parents had a significantly lower QOL, family function and health satisfaction, and higher psychological distress than parents of children with typical development. Gross-motor delay impacts on QOL of these children (regression coefficient: -9.59, P < 0.05), global functioning is related to cognition delay (regression coefficient: -20.22, P < 0.01) and physical health of their parents (regression coefficient: 0.87, P < 0.01).
Children with unclassified developmental delays had lower QOL and health status, and their condition had greater impacts on the family than children with typical development. Gross motor and cognition development related to the QOL and global functioning in these children.
本研究旨在评估未分类发育迟缓儿童的生活质量（QOL）和健康状况，以及这对家庭的影响。
共招募了60名未分类发育迟缓学龄前儿童的父母，以及56名年龄和性别匹配的发育正常儿童的父母。我们向父母发放了儿童生活质量量表（PedsQL）通用核心量表和儿科结局数据收集工具，以评估其子女的生活质量和健康状况。通过世界卫生组织生活质量简表、PedsQL家庭影响模块、医院焦虑抑郁量表和PedsQL健康满意度对父母进行评估，以评估这种情况对家庭的影响。通过逐步回归分析，分析了与未分类发育迟缓儿童的生活质量和功能相关的变量。
与发育正常的儿童相比，未分类发育迟缓的儿童生活质量（包括心理社会和身体方面）和健康状况显著较低。他们的父母生活质量、家庭功能和健康满意度显著较低，且心理困扰高于发育正常儿童的父母。粗大运动迟缓影响这些儿童的生活质量（回归系数：-9.59，P<0.05），整体功能与认知迟缓（回归系数：-20.22，P<0.01）及其父母的身体健康（回归系数：0.87，P<0.01）有关。
未分类发育迟缓的儿童生活质量和健康状况较低，与发育正常的儿童相比，他们的状况对家庭的影响更大。粗大运动和认知发育与这些儿童的生活质量和整体功能有关。
