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内心混乱的外在映射:癌症患者亲属的博客体验

External mirroring of inner chaos: blogging as experienced by the relatives of people with cancer.

作者信息

Andersson Maria, Gustafsson Elisabeth, Hansson Kristina, Karlsson Margareta

机构信息

Uddevalla Hospital, Sweden.

出版信息

Int J Palliat Nurs. 2013 Jan;19(1):16-23. doi: 10.12968/ijpn.2013.19.1.16.

DOI:10.12968/ijpn.2013.19.1.16
PMID:23354429
Abstract

BACKGROUND

Relatives of a person suffering from cancer risk being affected both physically and psychologically. Blogging has become increasingly popular as a forum for communicating experiences, but few studies have focused on what blogging about a relative's cancer journey means to the author.

AIM

To illuminate relatives' experiences of blogging when a family member is in the end-of-life phase of cancer.

METHOD

Telephone interviews were conducted with 12 people about their experiences of blogging during and after their family member's illness. The data was analysed using qualitative content analysis.

FINDINGS

Blogging facilitated everyday life, introduced the relatives to new friends with similar experiences, helped them in their grief process, and helped them to preserve memories. The negative aspects were being misunderstood and publicly criticised as well as the feeling of providing readers with 'reality show' entertainment.

CONCLUSION

Blogging was seen as a complement to professional care that contributed to the prevention of ill health.

摘要

背景

癌症患者的亲属面临身体和心理受影响的风险。博客作为交流经历的平台日益流行,但很少有研究关注记录亲属的癌症历程对博主意味着什么。

目的

阐明家庭成员处于癌症临终阶段时亲属的博客经历。

方法

对12人进行电话访谈,了解他们在家庭成员患病期间及之后的博客经历。采用定性内容分析法对数据进行分析。

结果

博客便利了日常生活,使亲属结识有相似经历的新朋友,有助于他们的悲伤过程,还能帮助他们保存记忆。负面的方面包括被误解和公开批评,以及感觉给读者提供了“真人秀”式的娱乐。

结论

博客被视为专业护理的补充,有助于预防健康问题。

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