Research Unit of Clinical Nursing, Bispebjerg and Frederiksberg University Hospital, Copenhagen, Denmark.
J Psychosoc Oncol. 2013;31(3):334-55. doi: 10.1080/07347332.2013.778933.
As long as life could be lived as before patients could cope with their problems. But the progression of the illness challenged feelings and filled life with increasing levels of chaos and feelings of powerlessness. Relatives became involved quite late in the patients' interaction with the professionals, an interaction that was characterized by lack of continuity and the professionals' focus on the patient's sick body. It was therefore seldom that professionals had insight into the family's resources and need for professional support. This made it more difficult for the family to evaluate, control and cope with their suffering. Instead, patients gradually adapted to the professionals' and relatives' priorities and sometimes their control over the increasingly failing and dying body.
只要生活还能像以前一样继续，患者就能应对他们的问题。但疾病的进展挑战了他们的感受，使生活充满了越来越多的混乱和无力感。亲属在患者与专业人员的互动中很晚才介入，这种互动的特点是缺乏连续性，专业人员关注的是患者患病的身体。因此，专业人员很少能够了解家庭的资源和对专业支持的需求。这使得家庭更难以评估、控制和应对他们的痛苦。相反，患者逐渐适应了专业人员和亲属的优先事项，有时甚至适应了他们对日益衰弱和垂死的身体的控制。
