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爱的政治:残疾儿童父母叙事中的叙述结构、互文性和社会代理。

Politics of love: narrative structures, intertextuality and social agency in the narratives of parents with disabled children.

机构信息

Department of Physical Medicine and Rehabilitation, Oslo University Hospital, Norway.

出版信息

Sociol Health Illn. 2013 Nov;35(8):1149-63. doi: 10.1111/1467-9566.12027. Epub 2013 Jan 29.

Abstract

Recent research has highlighted how parental narratives can be important in the resistance against disabling processes. This article contains analyses of enabling language in narratives published by Scandinavian disability rights organizations. First, drawing on the work of Fisher and Goodley, I point out that the material constitute a threefold: normality narratives, resistance narratives, and narratives that demonstrate an appreciation of the present and the child's individual alterity. Second, I demonstrate that the last narrative draws on Romanticism rather than linguistic resources from disability culture. Third, I show that these narratives are hyperboles - texts that strengthen and emphasise the valuation to the point where the narrative structure transcends narrative consistency. Fourth, drawing on the work of Kristeva, I argue that this form of narration constitutes an intimate politics of love.

摘要

最近的研究强调了父母的叙述如何在抵制致残过程中起到重要作用。本文分析了斯堪的纳维亚残疾权利组织发表的叙述中的启用语言。首先,借鉴 Fisher 和 Goodley 的工作,我指出,这些材料构成了三重叙述:正常叙述、抵抗叙述和对当下和孩子个体差异的欣赏叙述。其次,我表明,最后一种叙述借鉴了浪漫主义,而不是残疾文化的语言资源。第三,我表明,这些叙述是夸张的——文本通过强化和强调价值,以至于叙述结构超越了叙述的一致性。第四,借鉴 Kristeva 的工作,我认为这种叙述形式构成了一种亲密的爱的政治。

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