Query J M, Reichelt C, Christoferson L A
Department of Neuroscience, University of North Dakota School of Medicine, Fargo 58102.
Dev Med Child Neurol. 1990 Feb;32(2):119-28. doi: 10.1111/j.1469-8749.1990.tb16911.x.
Thirty-six patients who had had shunts for hydrocephalus between 14 and 36 years ago, and their parents and siblings were interviewed about the effects of chronic illness on their lives. Despite reports of severe financial, physical and emotional stress, most judged the quality of their family relationships and lives to be good. General outcome was poorest for those with unfavourable medical outcomes and/or questionable prospects for future independence. Almost all respondents were satisfied with the level and duration of treatment they had received.
对36名在14至36年前接受过脑积水分流手术的患者及其父母和兄弟姐妹进行了访谈，询问慢性病对他们生活的影响。尽管有报告称存在严重的经济、身体和情感压力，但大多数人认为他们的家庭关系和生活质量良好。对于那些医疗结果不佳和/或未来独立前景存疑的人来说，总体结果最差。几乎所有受访者都对他们所接受治疗的水平和时长感到满意。
