向家庭宣传晚期痴呆症患者的临终护理：一本加拿大家庭手册在加拿大、法国和日本护士中的可接受性。
Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and Japan.
作者信息
Arcand Marcel, Brazil Kevin, Nakanishi Miharu, Nakashima Taeko, Alix Michel, Desson Jean-François, Morello Rémy, Belzile Louise, Beaulieu Marie, Hertogh Cees M P M, Toscani Franco, van der Steen Jenny T
出版信息
Int J Palliat Nurs. 2013 Feb;19(2):67-74. doi: 10.12968/ijpn.2013.19.2.67.
BACKGROUND
The families of people with late-stage dementia need to be informed about the course of the dementia and the comfort/palliative care option. A booklet was written for that purpose and can be provided to family members by physicians and nurses.
METHODS
The acceptability of the booklet for nurses was tested in Canada (French and English version), France (French Canadian version) and Japan (translated and adapted version).
RESULTS
Overall, 188 nurses completed a survey questionnaire. The booklet was accepted best in Canada and less so in France and Japan. Despite regional variation, the majority of the nurses perceived the booklet as useful for families. The French and Japanese nurses also reported a greater need for palliative care education in advanced dementia.
CONCLUSION
The booklet may help nurses educate families about end-of-life issues in dementia palliative care, but local adaptation of the booklet content and physician engagement are necessary.
背景
晚期痴呆症患者的家属需要了解痴呆症的病程以及舒适护理/姑息治疗选项。为此编写了一本手册，医生和护士可将其提供给家属。
方法
在加拿大（法语和英语版本）、法国（法裔加拿大人版本）和日本（翻译和改编版本）对护士对手册的接受度进行了测试。
结果
总体而言，188名护士完成了调查问卷。该手册在加拿大的接受度最高，在法国和日本则较低。尽管存在地区差异，但大多数护士认为该手册对家庭有用。法国和日本的护士还报告说，在晚期痴呆症方面对姑息治疗教育的需求更大。
结论
该手册可能有助于护士就痴呆症姑息治疗中的临终问题对家庭进行教育，但对手册内容进行本地化调整以及医生的参与是必要的。
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