Biard Marie, Detcheverry Flavie E, Betzner William, Becker Sara, Grewal Karl S, Azab Sandi, Bloniasz Patrick F, Mazerolle Erin L, Phelps Jolene, Smith Eric E, Badhwar AmanPreet
Department of Medicine, Université de Montréal, Montréal, Québec, Canada.
Multiomics Investigation of Neurodegenerative Diseases (MIND) Lab, Montréal, Québec, Canada.
Alzheimers Dement. 2025 Sep;21(9):e70636. doi: 10.1002/alz.70636.
Living with dementia requires decision making about numerous topics including daily activities and advance care planning (ACP). Both individuals living with dementia and care partners require informed support for decision making. We conducted an umbrella review to assess knowledge translation (KT) interventions supporting decision making for individuals living with dementia and their informal care partners. Four databases were searched using 50 different search terms, identifying 22 reviews presenting 32 KT interventions. The most common KT decision topic was ACP (N = 21) which includes advanced care directives, feeding options, and placement in long-term care. The majority of KT interventions targeted care partners only (N = 16), or both care partners and individuals living with dementia (N = 13), with fewer interventions (N = 3) targeting individuals living with dementia. Overall, our umbrella review offers insights into the beneficial impacts of KT interventions, such as increased knowledge and confidence, and decreased decisional conflicts. HIGHLIGHTS: Knowledge translation (KT) helps people with dementia and caregivers make decisions. Our umbrella review investigated whether KT interventions helped decision making. KT interventions were beneficial, with advance care planning being the main topic. Thirteen (41%) of the 32 KT interventions were found to be freely accessible online. We recommend the creation of a KT toolkit to guide topic-specific decision making.
与痴呆症共存需要就包括日常活动和预先护理计划（ACP）在内的众多主题做出决策。痴呆症患者及其护理伙伴在决策时都需要明智的支持。我们进行了一项综合性综述，以评估支持痴呆症患者及其非正式护理伙伴进行决策的知识转化（KT）干预措施。使用50个不同的搜索词对四个数据库进行了检索，识别出22篇综述，其中介绍了32项KT干预措施。最常见的KT决策主题是ACP（N = 21），包括高级护理指令、喂养选择以及长期护理安置。大多数KT干预措施仅针对护理伙伴（N = 16），或同时针对护理伙伴和痴呆症患者（N = 13），而针对痴呆症患者的干预措施较少（N = 3）。总体而言，我们的综合性综述揭示了KT干预措施的有益影响，如知识增加、信心增强以及决策冲突减少。要点：知识转化（KT）有助于痴呆症患者和护理人员做出决策。我们的综合性综述调查了KT干预措施是否有助于决策。KT干预措施是有益的，预先护理计划是主要主题。32项KT干预措施中有13项（41%）可在网上免费获取。我们建议创建一个KT工具包，以指导针对特定主题的决策。
