社区中肌痛性脑脊髓炎/慢性疲劳综合征的定性自然史研究。
A qualitative natural history study of ME/CFS in the community.
作者信息
Anderson Valerie R, Jason Leonard A, Hlavaty Laura E
机构信息
a Department of Psychology , Michigan State University , East Lansing , Michigan , USA.
出版信息
Health Care Women Int. 2014 Jan;35(1):3-26. doi: 10.1080/07399332.2012.684816. Epub 2013 Feb 27.
Abstract
In previous qualitative research on Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), researchers have focused on the experiences of patients with ME/CFS in tertiary care samples. This qualitative study examined the natural history of people with ME/CFS (n = 19) from a community-based sample. Findings highlighted multilayered themes involving the illness experience and the physical construction of ME/CFS. In addition, this study further illuminated unique subthemes regarding community response and treatment, which have implications for understanding the progression of ME/CFS as well as experiences of those within patient networks. There is a need for more longitudinal qualitative research on epidemiological samples of patients with ME/CFS.
摘要
在先前关于肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）的定性研究中，研究人员聚焦于三级医疗样本中ME/CFS患者的经历。这项定性研究调查了来自社区样本的19名ME/CFS患者的自然病史。研究结果突出了涉及疾病经历和ME/CFS身体构成的多层次主题。此外，本研究进一步阐明了关于社区反应和治疗的独特子主题，这对于理解ME/CFS的病程以及患者网络中患者的经历具有重要意义。有必要对ME/CFS患者的流行病学样本开展更多纵向定性研究。
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