Yen Laurann, McRae Ian S, Jowsey Tanisha, Gillespie James, Dugdale Paul, Banfield Michelle, Matthews Paul, Kljakovic Marjan
1Australian Primary Health Care Research Institute, The Australian National University, Australia.
Chronic Illn. 2013 Dec;9(4):268-82. doi: 10.1177/1742395313476720. Epub 2013 Mar 5.
People living with chronic illness report spending a lot of time managing their health, attempting to balance the demands of their illness/es with other activities. This study was designed to measure the time older people with chronic illness spend on specific health-related activities. Key methods: Data were collected in 2010 using a national survey of people aged 50 years and over selected from the membership of National Seniors Australia, the Diabetes Services Scheme and The Lung Foundation. Respondents provided recall data on time used for personal health care, non-clinical health activity; and health service interactions.
While most people with a chronic illness spend on average less than 30 minutes a day on health-related activities, the highest decile of respondents averaged at least 2 hours each day. People with COPD report the highest expenditure of time. The greatest amount of time was spent on daily personal health care activities.
For a minority of people with chronic illness, time demands for health-related activities can be so great that other activities must be affected. Some time demands are amenable to system interventions that would result in a more patient-centered organisation of care.
患有慢性病的人报告称，他们花费大量时间管理自己的健康，试图在疾病需求与其他活动之间取得平衡。本研究旨在测量患有慢性病的老年人在特定健康相关活动上花费的时间。主要方法：2010年通过对50岁及以上人群进行全国性调查收集数据，这些人群选自澳大利亚全国老年人协会、糖尿病服务计划和肺部基金会的成员。受访者提供了用于个人医疗保健、非临床健康活动以及医疗服务互动的时间回忆数据。
虽然大多数慢性病患者平均每天在健康相关活动上花费不到30分钟，但处于最高十分位数的受访者平均每天至少花费2小时。慢性阻塞性肺疾病（COPD）患者报告的时间支出最高。花费时间最多的是日常个人医疗保健活动。
对于少数慢性病患者来说，健康相关活动的时间需求可能非常大，以至于其他活动必然会受到影响。一些时间需求适合通过系统干预来解决，这将带来更以患者为中心的护理组织模式。
