Traube Dorian E, Cederbaum Julie A, Kerkorian Dara, Bhupali Chetan, McKay Mary M
University of Southern California, Los Angeles, CA 91202, USA.
J Empir Res Hum Res Ethics. 2013 Feb;8(1):79-90. doi: 10.1525/jer.2013.8.1.79.
We examined factors influencing informed assent, initial involvement, and ongoing involvement in HIV-focused CBPR research for African American children. Study participants (n = 170) were recruited from the Collaborative HIV and Adolescent Mental Health Project and completed an interview format designed to assess attitudes about research activities. Data were analyzed using a mixed-methods approach. Three themes emerged via quantitative and qualitative data analysis: (1) motivation for the child to participate in the research; (2) trust in researchers; and (3) understanding of the informed assent process. Findings from this study can help researchers develop procedures facilitating ethics boards to assess the appropriateness of child assent in HIV-focused community-based participatory research.
我们研究了影响非裔美国儿童对以艾滋病病毒为重点的社区参与式行动研究(CBPR)的知情同意、初始参与和持续参与的因素。研究参与者(n = 170)从艾滋病病毒与青少年心理健康合作项目中招募,并完成了一种旨在评估对研究活动态度的访谈形式。数据采用混合方法进行分析。通过定量和定性数据分析得出了三个主题:(1)儿童参与研究的动机;(2)对研究人员的信任;(3)对知情同意过程的理解。本研究的结果可以帮助研究人员制定程序,便于伦理委员会评估在以艾滋病病毒为重点的社区参与式研究中儿童同意的适当性。