Palliative Care Education and Training, School of Medicine, Stanford University, Stanford, CA 94305, USA.
J Am Geriatr Soc. 2013 Mar;61(3):440-6. doi: 10.1111/jgs.12145.
The goal of this mixed-methods study was to characterize the perceptions of multicultural long-term care nurses about patient dignity at the end-of-life (EOL). The study was conducted in a large, urban, long-term care (LTC) facility. Participants were 45 long-term care nurses and 26 terminally ill nursing home residents. Nurses completed an openended interview about their perceptions of the concept of dying with dignity, and the data were analyzed using grounded theory methods. Main themes identified as promoting resident dignity at the EOL included treating them with respect, helping them prepare for the EOL, promoting shared decision-making, and providing high-quality care. The nurses’ cultural and religious backgrounds influenced their perceptions of what constitutes dignity-conserving care. Foreign-born nurses stressed the need for EOL rituals, but this was strikingly absent in the statements of U.S.-born nurses. Foreign-born Catholic nurses stated that the dying experience should not be altered using analgesics to relieve suffering or by attempts to hasten death by forgoing curative therapy or by other means. Nurses and terminally ill individuals completed the Dignity Card-sort Tool (DCT). A comparison of the DCT responses of the LTC nurses cohort with those of the terminally ill participants revealed that the nurses felt patient dignity was eroded when patient wishes were not followed and when they were treated without respect. In contrast, dying LTC residents felt that poor medical care and loss of ability to choose care options were the most important factors leading to erosion of dignity.
本混合方法研究的目的是描述长期护理护士对临终患者尊严的看法。该研究在一家大型城市长期护理(LTC)机构进行。参与者包括 45 名长期护理护士和 26 名临终养老院居民。护士们完成了一项关于他们对有尊严地死亡概念的看法的开放性访谈,数据使用扎根理论方法进行分析。在临终时促进居民尊严的主要主题包括尊重他们、帮助他们为临终做准备、促进共同决策和提供高质量的护理。护士的文化和宗教背景影响了他们对尊严保护护理的看法。外国出生的护士强调临终仪式的必要性,但这在土生土长的美国护士的陈述中却明显缺失。外国出生的天主教护士表示,不应该通过使用止痛药来减轻痛苦或通过放弃治疗性治疗或其他手段来加速死亡来改变临终体验。护士和临终患者完成了尊严卡片分类工具(DCT)。将 LTC 护士组与临终参与者的 DCT 反应进行比较后发现,当患者的意愿没有得到尊重,或者他们受到不尊重的对待时,护士们认为患者的尊严受到了侵蚀。相比之下,临终的养老院居民认为,医疗护理不佳和丧失选择护理选择的能力是导致尊严丧失的最重要因素。