Lin Hui-Chen, Lin Wen-Chuan, Lee Tzu-Ying, Lin Hung-Ru
School of Nursing, National Taipei University of Nursing and Health Sciences, Taipei, Taiwan.
Asian Pac J Cancer Prev. 2013;14(1):255-9. doi: 10.7314/apjcp.2013.14.1.255.
Cancer is the leading cause of death in Taiwan. Spouses are generally the main caregivers of affected patients but previous studies have seldom investigated the needs of male spouses of patients with metastatic cancer.
To explore the lived experiences of such male spouses.
A qualitative design using in-depth interviews was conducted with male spouses of patients with metastatic cancer being treated at the oncology outpatient department in a teaching hospital in northern Taiwan.
Nine participants aged 31-78 were interviewed. Content analysis of the interviews revealed five themes: suffering and struggling, difficulty in focusing on communication and interaction, shouldering responsibility, cherishing the love between husband and wife, and enabling each other to live better. This study demonstrated how male spouse experienced physical and psychological suffering when their wives suffered from metastatic cancer. They had to bear the pain of their wife's suffering, and also had to shoulder the responsibility for everything. All their efforts were put towards enabling each other to live a better life. They cherished the rest of the time they could spend with their wives, even though they had to live a hard life. As the male spouses of patients with metastatic cancer, the participants exhibited both the masculinity of men and the ability to express care and tenderness.
The results showed that male spouses need more attention in terms of communication and bearing with suffering. Health care professionals should more actively understand the needs and provide assistance when facing the male spouse of patients with cancer, so as make sure that they possess the ability to take care of their wives. Health care professionals should also assist and properly act as a bridge of communication between husbands and wives.
癌症是台湾地区的主要死因。配偶通常是受影响患者的主要照顾者,但以往研究很少调查转移性癌症患者男性配偶的需求。
探讨此类男性配偶的生活经历。
采用质性设计,对台湾北部一家教学医院肿瘤科门诊正在接受治疗的转移性癌症患者的男性配偶进行深入访谈。
对9名年龄在31至78岁之间的参与者进行了访谈。访谈内容分析揭示了五个主题:痛苦与挣扎、难以专注于沟通与互动、承担责任、珍惜夫妻间的爱、相互扶持让生活更美好。本研究展示了男性配偶在妻子患转移性癌症时所经历的身心痛苦。他们既要承受妻子患病的痛苦,又要承担一切责任。他们所有的努力都致力于让彼此生活得更美好。尽管生活艰难,他们仍珍惜与妻子共度的时光。作为转移性癌症患者的男性配偶,参与者既展现了男性的阳刚之气,又具备表达关爱与柔情的能力。
结果表明,男性配偶在沟通和承受痛苦方面需要更多关注。医护人员在面对癌症患者的男性配偶时,应更积极地了解其需求并提供帮助,以确保他们具备照顾妻子的能力。医护人员还应协助并妥善充当夫妻之间的沟通桥梁。