Poisson J, Six M, Morin C, Fardet L
Service de médecine interne, hôpital Saint-Antoine, AP-HP, 184, rue du Faubourg-Saint-Antoine, 75012 Paris, France.
Rev Med Interne. 2013 May;34(5):255-7. doi: 10.1016/j.revmed.2013.02.015. Epub 2013 Mar 26.
About 1% of the general population are receiving systemic glucocorticoids. The information about this treatment sought by patients is unknown.
The website www.cortisone-info.fr aims to provide therapeutic information about glucocorticoids and glucocorticoid therapy. It was posted on January 16, 2012. The information available on the website is documented and based on the recent medical literature. The website is made of 43 pages divided into five main sections (generalities about glucocorticoids, adverse events, measures associated with glucocorticoid therapy, discontinuation of glucocorticoids and, situations requiring attention). The website traffic between February 1st, 2012 and January 4, 2013 was analyzed using Google Analytics.
During the study period, the website was visited by 67,496 people (average number of visitors per day: 33 in February 2012, 326 in December 2012). The number of page views was 230,496 or an average of 3.5 pages per visitor. Of these 230,496 page views, 145,431 (63.1%) were related to adverse events and 37,722 (16.4%) were related to generalities about glucocorticoids (e.g., what is cortisone? For which disease? How does it work?). Information particularly sought by visitors was related to the diet to follow during glucocorticoid therapy (page accessed 11,946 times), data about what cortisone is (page accessed 11,829 times) and the effects of glucocorticoids on weight (page accessed 10,442 times).
Knowledge of glucocorticoid-treated patients' expectations may help physicians to optimize information they give, thereby helping to reduce patients' concerns about glucocorticoids and to improve adherence to the treatment.
普通人群中约1%的人正在接受全身性糖皮质激素治疗。患者寻求的关于这种治疗的信息尚不清楚。
在研究期间,该网站有67496人访问(2012年2月平均每日访问者数量:33人,2012年12月为326人)。页面浏览量为230496次,即每位访问者平均浏览3.5页。在这230496次页面浏览中,145431次(63.1%)与不良事件相关,37722次(16.4%)与糖皮质激素概述相关(例如,可的松是什么?用于治疗哪种疾病?它是如何起作用的?)。访问者特别寻求的信息与糖皮质激素治疗期间应遵循的饮食有关(该页面访问11946次)、关于可的松是什么的数据(该页面访问11829次)以及糖皮质激素对体重的影响(该页面访问10442次)。
了解接受糖皮质激素治疗患者的期望可能有助于医生优化他们提供的信息,从而有助于减少患者对糖皮质激素的担忧并提高治疗依从性。