Department of Dermatology, University of Amsterdam, AZ Amsterdam, The Netherlands.
Br J Dermatol. 2013 Aug;169(2):398-405. doi: 10.1111/bjd.12372.
Various psoriasis treatments are currently available: topical therapy, photo(chemo)therapy, oral agents and biologics. Little is known about patients' satisfaction with these treatment options. Moreover, the few available studies show methodological shortcomings.
To answer the following questions: firstly, how satisfied are patients with psoriasis with their current treatment and does patients' satisfaction significantly differ between treatment types when controlling for demographic and clinical factors? Secondly, how important are specific domains of satisfaction to patients, and when taking perceived importance into account, which domains merit the most attention in improving quality of care?
Members of the two existing Dutch associations for patients with psoriasis were invited to complete a web-based survey, which included a study-specific satisfaction questionnaire.
A total of 1293 patients completed the survey (response rate 32%). Overall, patients were moderately satisfied with their current treatment. Patients receiving topical treatment were significantly least satisfied; patients receiving biologic treatment were significantly most satisfied. Overall, patients rated 'treatment effectiveness' as most important, followed by 'treatment safety' and 'doctor-patient communication'. Domains with the highest 'room for improvement' scores were effectiveness of topical therapy, phototherapy and oral agents (but not biologic treatment), convenience of topical treatment and safety of systemic treatments (both oral agents and biologics).
From the perspective of patients, biologic treatment is promising. To improve further the quality of psoriasis care, the effectiveness and convenience of topical therapies, the safety of systemic therapies, and doctors' communication skills need to be addressed.
目前有多种治疗银屑病的方法:局部治疗、光疗(化学疗法)、口服药物和生物制剂。关于患者对这些治疗选择的满意度知之甚少。此外,少数可用的研究显示存在方法学缺陷。
回答以下问题:首先,患者对当前的银屑病治疗方案的满意度如何,在控制人口统计学和临床因素的情况下,不同治疗类型的患者满意度是否存在显著差异?其次,特定满意度领域对患者有多重要,在考虑到感知重要性的情况下,哪些领域在改善护理质量方面最值得关注?
邀请荷兰现有的两个银屑病患者协会的成员完成一项基于网络的调查,该调查包括一个特定于研究的满意度问卷。
共有 1293 名患者完成了调查(应答率为 32%)。总体而言,患者对当前的治疗方案满意度中等。接受局部治疗的患者满意度最低;接受生物治疗的患者满意度最高。总体而言,患者将“治疗效果”评为最重要,其次是“治疗安全性”和“医患沟通”。被评为“改进空间最大”的领域包括局部治疗、光疗和口服药物的效果(但生物治疗除外)、局部治疗的便利性以及系统治疗的安全性(包括口服药物和生物制剂)。
从患者的角度来看,生物治疗很有前景。为了进一步提高银屑病护理质量,需要关注局部治疗的有效性和便利性、系统治疗的安全性以及医生的沟通技巧。