Angastiniotis Michalis, Vives Corrons Joan-Lluis, Soteriades Elpidoforos S, Eleftheriou Androulla
Thalassaemia International Federation (TIF), 31 Ifigeneias Street, 2007 Strovolos, Nicosia, Cyprus.
ScientificWorldJournal. 2013;2013:727905. doi: 10.1155/2013/727905. Epub 2013 Mar 18.
Migration from different parts of the world to several European countries leads to the introduction of haemoglobinopathy genes into the population, which creates several demanding needs for prevention and treatment services for Hb disorders. In this paper we examined the degree to which European health services have responded to such challenges and in particular to health services necessary to address the needs of patients with thalassaemia and sickle cell disease (SCD). Information on available services was obtained from international organizations, collaborated European project, and the Thalassaemia International Federation (TIF) Databases, which include information from published surveys, registries, field trips, and delegation visits to countries and regions by expert advisors, local associations, and other collaborators' reports. Results show that countries with traditional strong prevention and treatment programs are well prepared to face the above challenges, while others are urgently needed to address these problems in a systematic way. The Thalassaemia International Federation (TIF) is committed to monitor the progress, raise awareness, and support the promotion of more immigrant-oriented health policies to ensure their integration in society and their access to appropriate, adequate, and timely health services.
来自世界不同地区的人口向几个欧洲国家迁移，导致血红蛋白病基因引入当地人群，这对血红蛋白疾病的预防和治疗服务提出了诸多迫切需求。在本文中，我们考察了欧洲卫生服务应对此类挑战的程度，特别是满足地中海贫血和镰状细胞病（SCD）患者需求所需的卫生服务。关于现有服务的信息来自国际组织、合作的欧洲项目以及地中海贫血国际联合会（TIF）数据库，这些信息包括已发表的调查、登记册、实地考察以及专家顾问、当地协会和其他合作者对各国和各地区的访问报告。结果表明，拥有传统强大预防和治疗项目的国家已做好充分准备应对上述挑战，而其他国家则迫切需要系统地解决这些问题。地中海贫血国际联合会（TIF）致力于监测进展情况、提高认识，并支持推广更多以移民为导向的卫生政策，以确保他们融入社会并获得适当、充足和及时的卫生服务。
