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患有安格曼综合征儿童对 AAC 系统的使用和接受情况。

Use and acceptance of AAC systems by children with Angelman syndrome.

机构信息

Department of Communication Sciences and Disorders, University of New Hampshire, Durham, NH, USA.

出版信息

J Appl Res Intellect Disabil. 2013 Nov;26(6):557-67. doi: 10.1111/jar.12048. Epub 2013 Apr 22.

Abstract

BACKGROUND

This investigation of children with Angelman syndrome (AS) examined reported uses of electronic augmentative and alternative communication (AAC) devices (i.e., VOCAs), including speech generating devices, in relation to other aided and unaided methods of communication.

MATERIALS AND METHOD

A total of 122 parents of children with AS, mostly from the USA self-administered a survey over the Internet. Qualitative methods based primarily on thematic analysis were used to organize and examine data.

RESULTS

Children relied heavily on unaided methods of communication such as natural gestures, regardless of their experiences with electronic communication devices. Parents cited various reasons for children's acceptance or rejection of their most advanced devices.

DISCUSSION

Clinical implications are discussed in relation to children's needs for multimodal methods of communication, including accurately matching children's capabilities to AAC device characteristics. Practitioners are encouraged to consider reasons that parents cited for children's acceptance versus rejection of devices when implementing AAC programs.

摘要

背景

本项针对安格曼综合征(AS)患儿的研究调查了电子辅助和替代沟通(AAC)设备(即语音输出交流器)的使用情况,包括言语生成设备,以及与其他辅助和非辅助沟通方式的关系。

材料与方法

共有 122 名 AS 患儿的家长,主要来自美国,通过互联网自行完成了一项调查。采用主要基于主题分析的定性方法对数据进行组织和检查。

结果

无论是否有电子沟通设备的使用经验,患儿都严重依赖于非辅助沟通方式,如自然手势。家长们列举了孩子接受或拒绝其最先进设备的各种原因。

讨论

本文讨论了临床应用的相关问题,涉及到儿童对多模态沟通方式的需求,包括将儿童的能力与 AAC 设备的特点准确匹配。鼓励从业者在实施 AAC 计划时,考虑到家长提出的孩子接受或拒绝设备的原因。

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