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家长对其子女使用辅助/替代性沟通的看法和经验:系统评价和定性元分析。

Parents' Perceptions and Experiences with Their Children's Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis.

机构信息

Department of Developmental and Educational Psychology and ERI-Lectura, University of Valencia, Avda. Blasco Ibáñez, 21, 46010 Valencia, Spain.

Department of Basic Psychology and ERI-Lectura, University of Valencia, Avda. Blasco Ibáñez, 21, 46010 Valencia, Spain.

出版信息

Int J Environ Res Public Health. 2022 Jul 1;19(13):8091. doi: 10.3390/ijerph19138091.

DOI:10.3390/ijerph19138091
PMID:35805750
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9266194/
Abstract

Augmentative and alternative communication (AAC) consists of any method of communicating that supplements or completely substitutes oral and/or written language when it is impaired. Therefore, it enables children with complex communication needs to develop their full communicative potential. However, despite the many benefits of AAC and its widespread use, several review studies have underscored the problems faced by parents and children who use AAC in their daily lives. The general objective of this systematic review and qualitative meta-synthesis is to provide a complete overview of parents' experiences and perceptions with their children's use of AAC. Specifically, it aimed to identify common themes and subthemes of interest and to analyze the research quality of the selected studies. An exhaustive literature search was carried out using different electronic databases. Nineteen studies were included, involving 297 parents. A thematic synthesis was undertaken. Three main themes and nine subthemes were identified: service support (accessibility, providers and coordination); characteristics of AAC systems (usability and acceptability, features, cost and funding); and integration of AAC in daily life (family, school, social and community). Findings raise a need for more services that support children with complex communication deficits in different contexts, more functional use of AAC systems at school and in real-world situations, as well as service assistance over an extended time period.

摘要

辅助和替代性沟通(AAC)是指当口头和/或书面语言受损时,用于补充或完全替代的任何沟通方法。因此,它使具有复杂沟通需求的儿童能够充分发挥其沟通潜力。然而,尽管 AAC 具有许多优势并得到广泛应用,但几项综述研究强调了在日常生活中使用 AAC 的父母和儿童所面临的问题。本系统评价和定性元综合的总体目标是全面概述父母对其子女使用 AAC 的体验和看法。具体而言,旨在确定共同关注的主题和子主题,并分析所选研究的研究质量。使用不同的电子数据库进行了详尽的文献检索。共纳入了 19 项研究,涉及 297 名父母。进行了主题综合分析。确定了三个主要主题和九个子主题:服务支持(可及性、提供者和协调);AAC 系统的特点(可用性和可接受性、功能、成本和资金);以及 AAC 在日常生活中的整合(家庭、学校、社会和社区)。研究结果表明,需要在不同环境中为具有复杂沟通障碍的儿童提供更多的服务,在学校和现实生活中更有效地使用 AAC 系统,并提供更长时间的服务支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/edea/9266194/3e605d3fc24b/ijerph-19-08091-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/edea/9266194/3e605d3fc24b/ijerph-19-08091-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/edea/9266194/3e605d3fc24b/ijerph-19-08091-g001.jpg

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Augmentative and Alternative Communication and Speech Production for Individuals with ASD: A Systematic Review.自闭症谱系障碍个体的辅助沟通和言语产生:系统评价。
J Autism Dev Disord. 2021 Nov;51(11):4199-4212. doi: 10.1007/s10803-021-04868-2. Epub 2021 Jan 28.
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"All of a sudden we noticed a difference at home too": parents' perception of a parent-focused early communication and AAC intervention for toddlers.
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J Autism Dev Disord. 2025 May 25. doi: 10.1007/s10803-025-06885-x.
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Comparing and contrasting barriers in augmentative alternative communication use in nonspeaking autism and complex communication needs: multi-stakeholder perspectives.非言语自闭症及复杂沟通需求者在使用辅助和替代沟通时的障碍比较与对比:多方利益相关者视角
Front Psychiatry. 2024 Jun 10;15:1385947. doi: 10.3389/fpsyt.2024.1385947. eCollection 2024.
“突然间我们也注意到了家里的变化”:父母对以家长为中心的早期沟通和婴幼儿辅助沟通干预的看法。
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Intellect Dev Disabil. 2020 Oct 1;58(5):409-421. doi: 10.1352/1934-9556-58.5.409.
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Preliminary Investigation of the Perspectives of Parents of Children With Cerebral Palsy on the Supports, Challenges, and Realities of Integrating Augmentative and Alternative Communication Into Everyday Life.对脑瘫患儿家长关于将辅助与替代性沟通融入日常生活的支持、挑战及现实情况看法的初步调查。
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