Department of Developmental and Educational Psychology and ERI-Lectura, University of Valencia, Avda. Blasco Ibáñez, 21, 46010 Valencia, Spain.
Department of Basic Psychology and ERI-Lectura, University of Valencia, Avda. Blasco Ibáñez, 21, 46010 Valencia, Spain.
Int J Environ Res Public Health. 2022 Jul 1;19(13):8091. doi: 10.3390/ijerph19138091.
Augmentative and alternative communication (AAC) consists of any method of communicating that supplements or completely substitutes oral and/or written language when it is impaired. Therefore, it enables children with complex communication needs to develop their full communicative potential. However, despite the many benefits of AAC and its widespread use, several review studies have underscored the problems faced by parents and children who use AAC in their daily lives. The general objective of this systematic review and qualitative meta-synthesis is to provide a complete overview of parents' experiences and perceptions with their children's use of AAC. Specifically, it aimed to identify common themes and subthemes of interest and to analyze the research quality of the selected studies. An exhaustive literature search was carried out using different electronic databases. Nineteen studies were included, involving 297 parents. A thematic synthesis was undertaken. Three main themes and nine subthemes were identified: service support (accessibility, providers and coordination); characteristics of AAC systems (usability and acceptability, features, cost and funding); and integration of AAC in daily life (family, school, social and community). Findings raise a need for more services that support children with complex communication deficits in different contexts, more functional use of AAC systems at school and in real-world situations, as well as service assistance over an extended time period.
辅助和替代性沟通(AAC)是指当口头和/或书面语言受损时,用于补充或完全替代的任何沟通方法。因此,它使具有复杂沟通需求的儿童能够充分发挥其沟通潜力。然而,尽管 AAC 具有许多优势并得到广泛应用,但几项综述研究强调了在日常生活中使用 AAC 的父母和儿童所面临的问题。本系统评价和定性元综合的总体目标是全面概述父母对其子女使用 AAC 的体验和看法。具体而言,旨在确定共同关注的主题和子主题,并分析所选研究的研究质量。使用不同的电子数据库进行了详尽的文献检索。共纳入了 19 项研究,涉及 297 名父母。进行了主题综合分析。确定了三个主要主题和九个子主题:服务支持(可及性、提供者和协调);AAC 系统的特点(可用性和可接受性、功能、成本和资金);以及 AAC 在日常生活中的整合(家庭、学校、社会和社区)。研究结果表明,需要在不同环境中为具有复杂沟通障碍的儿童提供更多的服务,在学校和现实生活中更有效地使用 AAC 系统,并提供更长时间的服务支持。