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家长对患有天使综合征的孩子的 AAC 及其相关指导的优先事项。

Parents' priorities for AAC and related instruction for their children with Angelman Syndrome.

机构信息

Department of Communication Sciences and Disorders, University of New Hampshire, Durham, New Hampshire 03824-3563, USA.

出版信息

Augment Altern Commun. 2010 Mar;26(1):30-40. doi: 10.3109/07434610903585406.

DOI:10.3109/07434610903585406
PMID:20196702
Abstract

This investigation examined the extent to which a set of 98 best practices in AAC, previously agreed upon by a panel of experts in AAC and inclusive education, reflected the actual preferences of 32 parents of children diagnosed with Angelman Syndrome. Parents' responses were examined in relation to whether their children were currently in mostly integrated (MI) settings with children without disabilities, or mostly segregated settings with other children with disabilities. With two exceptions, both groups, regardless of their children's current placements, viewed the practices favorably. When asked to prioritize the most important communication skills they wished their children to attain, all of the most frequently cited priorities were reflected in items contained in the questionnaire, supporting the social validity of the questionnaire as truly reflecting parents' priorities for AAC instruction. Implications of this investigation are discussed, along with next steps.

摘要

本研究考察了一套由人工语音交流(AAC)领域的专家和全纳教育专家共同认可的 98 项最佳实践,在多大程度上反映了 32 位被诊断患有安格曼综合征的儿童的父母的实际偏好。研究人员考察了父母的反应,这些反应与他们的孩子目前是在与无残疾儿童的融合环境(MI)中,还是在与其他残疾儿童的隔离环境中。除了两个例外,无论他们的孩子目前处于哪种环境,两个群体都对这些实践表示认可。当被要求优先考虑他们希望孩子获得的最重要的沟通技能时,所有被引用最多的优先级都反映在问卷中的项目中,这支持了问卷的社会有效性,因为它真正反映了父母对 AAC 教学的优先级。本文还讨论了这项研究的意义,以及下一步的工作。

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Augment Altern Commun. 2010 Mar;26(1):30-40. doi: 10.3109/07434610903585406.
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