a Faculty of Education , University of Ottawa , Ottawa , Canada .
Psychol Health Med. 2014;19(1):103-14. doi: 10.1080/13548506.2013.779729. Epub 2013 Apr 23.
The objective of this study was to understand how women living with the BRCA1 and BRCA2 genetic mutation adapt to this life transition and to identify the main adaptive tasks. A qualitative inquiry inspired by grounded theory revealed that participants cognitively appraised their test result in the same manner as women who have been diagnosed with breast cancer. Consequently, participants had to adapt to a condition that they perceived as a chronic illness. The following three main tasks were identified: Physical Task: Attempting to Limit the Impact of the Test Result, Psychological Task: Living with Uncertainty, and Social Task: Finding Effective Support. In conclusion, although these women live with the possibility of developing breast cancer, their experiences mirror those of individuals living with a chronic illness, and they must therefore adapt accordingly in a physical, psychological, and social manner.
本研究旨在了解携带有 BRCA1 和 BRCA2 基因突变的女性如何适应这种生活转变,并确定主要的适应任务。一项受扎根理论启发的定性研究表明,参与者在认知上评估其测试结果的方式与被诊断患有乳腺癌的女性相同。因此,参与者必须适应一种他们认为是慢性病的情况。确定了以下三个主要任务:身体任务:试图限制测试结果的影响,心理任务:生活在不确定性中,社会任务:寻找有效的支持。总之,尽管这些女性有可能患上乳腺癌,但她们的经历与患有慢性病的个体相似,因此她们必须在身体、心理和社会方面相应地进行适应。