Rink Elizabeth, Montgomery-Andersen Ruth, Koch Anders, Mulvad Gert, Gesink Dionne
Montana State University, Bozeman, MT 59717, USA.
J Empir Res Hum Res Ethics. 2013 Apr;8(2):110-8. doi: 10.1525/jer.2013.8.2.110.
We present the ethical challenges and lessons learned over the course of a four-year community-based participatory research (CBPR) project conducted on sexually transmitted infections (STIs) in Greenland. Specifically discussed is Inuulluataarneq-the "Having the Good Life" study. Inuulluataarneq is an interdisciplinary international, collaborative CBPR study involving the University of Toronto in Canada, the Greenlandic Medical Research Council, the Centre for Primary Care in Nuuk, the University of Greenland, local health partners and communities in Greenland, the Statens Serum Institut in Denmark, and Montana State University in the United States. Inuulluataarneq is the first CBPR project implemented in Greenland. Ethical issues discussed are: (1) the complexity of working with multiple institutional review boards on an international health research project using a CBPR framework; (2) unexpected influences on health policy; and (3) the dynamic of balancing community decision making and practices with academic research requirements and expectations. Inuulluataarneq's primary contribution to understanding ethical issues when conducting research in the Arctic involves an acceptance of the time, patience, and dedication of researchers and community partners it takes to discuss, understand, and process differing ethical viewpoints and procedures.
我们介绍了在格陵兰岛开展的一项为期四年的基于社区的参与性研究（CBPR）项目过程中所面临的伦理挑战以及汲取的经验教训。具体讨论的是“Inuulluataarneq——拥有美好生活”研究。Inuulluataarneq是一项跨学科的国际合作CBPR研究，参与机构包括加拿大的多伦多大学、格陵兰医学研究理事会、努克初级保健中心、格陵兰大学、格陵兰当地的卫生合作伙伴和社区、丹麦国家血清研究所，以及美国的蒙大拿州立大学。Inuulluataarneq是在格陵兰岛实施的首个CBPR项目。所讨论的伦理问题包括：（1）在一个使用CBPR框架的国际卫生研究项目中与多个机构审查委员会合作的复杂性；（2）对卫生政策产生的意外影响；（3）在社区决策和实践与学术研究要求及期望之间取得平衡的动态过程。Inuulluataarneq在理解北极地区研究中的伦理问题方面的主要贡献在于，它认可了研究人员和社区合作伙伴在讨论、理解和处理不同伦理观点及程序时所需付出的时间、耐心和奉献精神。
